Events from April 19, 2024 – April 19, 2024 – Association for Creatine Deficiencies

Sibshops 4/20/2024

Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register here.

Walk For Strength 2024

Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of a community that is committed to building strength and changing lives! Click here to learn more about the Walk For Strength. Subscribe to receive updates […]

2024 CCDS Scientific + Patient Symposium in Salt Lake City, UT

The 2024 CCDS Scientific + Patient Symposium will be held at the Little America Hotel in Salt Lake City, Utah. Talks will be presented all day June 29 & 30. We recommend arriving June 28 or earlier and departing July 1 or later. We strongly suggest that you reserve your hotel room(s) as soon as possible. All rooms, […]

Champions for a Cure Gala in Salt Lake City, UT

Champions for a Cure Gala Fundraiser & Silent Auction Benefitting ACD’s Patient Strong Fund Reserve your ticket Sponsor the gala June 30, 2024 • 6:00 – 10:00 PM Little America Hotel, 500 Main St, Salt Lake City, UT Join us for dinner & dancing • All attire welcome! Attendees will be from our patient community, […]

Sibshops 7/20/2024

Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register here.

Sibshops 10/19/2024

Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register here.