In early 2022, my daughter was diagnosed with GAMT, which is a Cerebral Creatine Deficiency Syndrome (CCDS). This diagnosis came too late in her life to prevent the neurological damage done since her birth that has caused a variety of healthcare concerns, but with the help of the work done by ACD and its supporters, we can ensure that other children have the tools, resources, and even possibly a cure so that CCDS becomes a preventable condition.
Please join us in support of this worthy cause. CCDS are so rare that support can be hard to find.
Thanks so much!
Join us on August 20th for the Association for Creatine Deficiencies’ 7th annual Walk for Strength and help us raise awareness for Cerebral Creatine Deficiency Syndromes! More details to come.