Meet Daniel
Daniel was born in July 2022 and has always been a happy and healthy child. However, during his first year of life, we noticed some delays in his development. He reached milestones like sitting, crawling, and walking later than usual. Doctors began investigating and confirmed the diagnosis of Cerebral Ceatine Deficiency Syndrome in his second year of life.
After turning two, Daniel started taking his first steps, and from that point onward, he has been improving every day. He can now eat some foods on his own and has gained some independence to move around and play.
Daniel is always smiling and radiates happiness when he is with his parents. He has a special admiration for his sister, Sara, who, despite being only four years old, is incredibly patient and understanding with him. She shows remarkable dedication in teaching and helping him daily. Thank you, Sara, for all the love you give your brother.
Having Daniel in our lives is a privilege. We look forward to celebrating his next achievements together and continuing to see him smile and thrive.
Thank you to the grandparents, uncles, aunts, and friends for all the love and care you show Daniel.
Thank you for your support both personally and for ACD, an organization that is making waves in CCDS research
Holiday Heroes 2024
Holiday Heroes is ACD’s year-end fundraiser and all funds raised are dedicated to research.
ACD has been promised a donation of $125,000 when $200,000 has been raised. This is will be ACD’s largest ever single donation and will be monumental for next year’s CCDS research! Your help will go farther this year than ever before!
Children with Creatine Deficiencies are severely impacted in their daily lives by:
- Seizures
- Lack of Speech
- Intellectual Disability
- Autism
- Behavioral Issues
- And more…
Your donation will fund research to change this!
ACD has some very promising research initiatives underway. Additional funding will expand these efforts and launch new projects, such as:
- The next phases of promising research projects (2 large projects began in 2024)
- New fellowship grants to early career researchers (5 were awarded in 2024)
- Creatine Deficiency Research Centers (multi-project CCDS research institutions; University of Utah was launched in 2023)
- New projects with a focus on therapeutic development (proposals under review)
Thank you for being a Holiday Hero!
We can’t do this without you. Please donate today to fund CCDS research.
Questions? Contact ACD.
