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X-WR-CALDESC:Events for Association for Creatine Deficiencies
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DTSTART;VALUE=DATE:20180201
DTEND;VALUE=DATE:20180202
DTSTAMP:20260430T115657
CREATED:20180124T050011Z
LAST-MODIFIED:20180929T181850Z
UID:4532-1517443200-1517529599@creatineinfo.org
SUMMARY:CCDS Awareness Day
DESCRIPTION:CCDS Awareness Day\nThursday\, February 1\, 2018\nIt’s official! February 1st is “Cerebral Creatine Deficiency Syndrome Awareness Day.”\nHelp spread awareness of CCDS by celebrating this day in your community.\nWe kicked off our first celebration of CCDS day in 2017 and are already working on plans to make 2018 even better! \nSome ideas for individuals in their hometown include: \n\nCreate a personalized campaign on our Crowdrise Page (Scroll down to the orange button “Create a Fundraiser”\, enter your CCDS story and pictures\, post on Facebook and it links back to support ACD’s campaign!)\nSpeak at your child’s school about CCDS.\nWear CCDS apparel\, available at the ACD Shop.\nDistribute awareness brochures and share your story with pediatricians\, developmental pediatricians\, pediatric neurologists\, and geneticists in your area. For brochures and other materials to share on CCDS Awareness day\, please email info@creatineinfo.org.\nBlog\, Tweet\, Facebook\, and Instagram your CCDS story and pictures of you spreading awareness on CCDS day\, using the hashtags #ccds #ccdsday and #acd.
URL:https://creatineinfo.org/event/ccds-awareness-day/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/jpeg:https://creatineinfo.org/wp-content/uploads/2015/09/TyPaigeCCDS-scaled.jpg
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DTSTART;VALUE=DATE:20170610
DTEND;VALUE=DATE:20170611
DTSTAMP:20260430T115657
CREATED:20180124T045820Z
LAST-MODIFIED:20180124T045904Z
UID:4529-1497052800-1497139199@creatineinfo.org
SUMMARY:Walk For Strength
DESCRIPTION:Saturday\, June 10th\nHost a local walk\, join an existing team\, or make a donation of support! Here’s how: \n[columns]\n[column layout=”two border”] \nTo host a local walk:\n\nChoose a Team Name\, Walk Location\, and Start Time.\nLocations may include neighborhoods\, parks\, hike and bike trails\, school tracks\, etc.\nGet Registered!\nRegister Here \nBe sure to enter your Team Name and share it with friends and family that plan to join your team. Get registered by May 15th. **Registrations received after May 15th will not include a shirt.\nNote: Shirts will be sent to the host to distribute on walk day.\nInvite Your Friends and Neighbors to Join.\nIdeas include: Create a Facebook page for your team or send out a letter or email to friends and loved ones that you would like them to join in your walk. Explain why you are walking and what their support means to you! No team is too small! Contact Heidi with questions. If your group is large\, we can help with the logistics.\nWalk on June 10th & Take Pictures to Share!\nShare your walk day pics by emailing them to heidi@creatineinfo.org.\n\n[/column]\n[column layout=”two border last”] \nTo join an existing team or walk alone:\n\nGet Registered!\nRegister Here \nBe sure to enter the *Team Name created by your walk host or enter “SOLO” if you’ll be walking alone.\nGet Your Gear.\nIf you are walking with a team\, your shirt will be sent to the host to distribute on walk day. *If you are walking alone\, enter “SOLO” for your team name\, and your shirt will be mailed directly to you.\n\nShow of Support\nIf your friends and family can’t make it on walk day\, but want to support your team\, they can \nDonate Here \nto make a donation. Choose “Walk for Strength” and enter the team’s name in the “in honor or memory of” section. \n[/column]\n[/columns]
URL:https://creatineinfo.org/event/walk-for-strength-2/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://creatineinfo.org/wp-content/uploads/2018/01/Screen-Shot-2018-01-23-at-10.57.38-PM.png
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DTSTART;VALUE=DATE:20170201
DTEND;VALUE=DATE:20170202
DTSTAMP:20260430T115657
CREATED:20180124T050759Z
LAST-MODIFIED:20180923T204649Z
UID:4546-1485907200-1485993599@creatineinfo.org
SUMMARY:CCDS Day & Rare Disease Day
DESCRIPTION:CCDS Day & Rare Disease Day\nIn 2017 we celebrated our first Cerebral Creatine Deficiency Syndrome Awareness Day on February 1st. This is a fitting time of year to recognize the importance of these rare disorders\, as the world-wide Rare Disease Day falls on February 28th. The month was filled with posts of support and sharing CCDS education amongst all. The sense of community was inspiring as profiles on FaceBook were changed to a virtual CCDS ribbon and pictures were posted of families wearing “We Are Rare” t-shirts. ACD is already planning towards the next CCDS Day\, February 1\, 2018! \n The Robinson Family on CCDS Day
URL:https://creatineinfo.org/event/ccds-day-rare-disease-day/
CATEGORIES:Community Events
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20151206
DTEND;VALUE=DATE:20151207
DTSTAMP:20260430T115657
CREATED:20180124T051536Z
LAST-MODIFIED:20180124T051536Z
UID:4566-1449360000-1449446399@creatineinfo.org
SUMMARY:Walk Now For Autism Speaks
DESCRIPTION:Walk Now For Autism Speaks\n \nAngel Stadium\nAnaheim\, California\nDecember 6\, 2015
URL:https://creatineinfo.org/event/walk-now-for-autism-speaks/
CATEGORIES:Community Events
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