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X-ORIGINAL-URL:https://creatineinfo.org
X-WR-CALDESC:Events for Association for Creatine Deficiencies
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220626
DTEND;VALUE=DATE:20220628
DTSTAMP:20260510T134858
CREATED:20210917T155907Z
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SUMMARY:2022 CCDS Scientific + Patient Symposium
DESCRIPTION:[vc_row][vc_column][vc_column_text]This conference is intended for members of the scientific and medical community\, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT\, CTD\, and AGAT disorders\, allowing for a deeper understanding of CCDS in the medical community and helping pave the way for innovation through collaboration.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_btn title=”View Talk Recordings” align=”center” link=”url:https%3A%2F%2Fwww.youtube.com%2Fplaylist%3Flist%3DPL5UTAk2ll_fzBHZ_OnG8cxKzzjnm4g-r4″][vc_btn title=”Full Program\, Abstracts & Bios” align=”center” link=”url:http%3A%2F%2Fcreatineinfo.org%2Fwp-content%2Fuploads%2F2022%2F06%2F2022-CCDS-Symposium-Program-Agenda-Abstracts.pdf|target:_blank”][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/2022-ccds-scientific-patient-symposium/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220820
DTEND;VALUE=DATE:20220821
DTSTAMP:20260510T134858
CREATED:20220415T180703Z
LAST-MODIFIED:20220518T164740Z
UID:20526-1660953600-1661039999@creatineinfo.org
SUMMARY:Walk for Strength 2022
DESCRIPTION:Join us on Saturday\, August 20th\, 2022 for the ACD’s 7th annual Walk for Strength!\nVisit our Walk for Strength 2022 page to learn more\, set up your team and register!
URL:https://creatineinfo.org/event/wfs-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221129T080000
DTEND;TZID=America/Denver:20221231T170000
DTSTAMP:20260510T134858
CREATED:20220811T192531Z
LAST-MODIFIED:20221109T195350Z
UID:57463-1669708800-1672506000@creatineinfo.org
SUMMARY:Holiday Heroes 2022
DESCRIPTION:[vc_row][vc_column][vc_column_text] \nHoliday Heroes 2022 is here!\nLearn more about this year’s campaign goals and how you can participate here.[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/holiday-heroes-2022/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230610
DTEND;VALUE=DATE:20230611
DTSTAMP:20260510T134858
CREATED:20230205T001250Z
LAST-MODIFIED:20230324T192925Z
UID:58297-1686355200-1686441599@creatineinfo.org
SUMMARY:Walk for Strength 2023
DESCRIPTION:Visit creatineinfo.org/walk to learn more!
URL:https://creatineinfo.org/event/wfs-2023/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230818T130000
DTEND;TZID=America/Denver:20230818T160000
DTSTAMP:20260510T134858
CREATED:20230505T163323Z
LAST-MODIFIED:20230505T163626Z
UID:58957-1692363600-1692374400@creatineinfo.org
SUMMARY:2023 CCDS Virtual Conference - Caregiver Session
DESCRIPTION:The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling experience\, sleep training for CCDS patients\, and identifying and managing CCDS behavior challenges. \nVisit the conference page and register today by clicking here!
URL:https://creatineinfo.org/event/2023-ccds-virtual-conference-caregiver/
CATEGORIES:Community Events,Symposium
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230825
DTEND;VALUE=DATE:20230827
DTSTAMP:20260510T134858
CREATED:20230324T193043Z
LAST-MODIFIED:20230505T163451Z
UID:58698-1692921600-1693094399@creatineinfo.org
SUMMARY:2023 CCDS Virtual Conference - Main Sessions
DESCRIPTION:Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and advancements. \nVisit the conference page and register today by clicking here!
URL:https://creatineinfo.org/event/2023-ccds-virtual-conference-main/
CATEGORIES:Symposium
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231128
DTEND;VALUE=DATE:20240101
DTSTAMP:20260510T134858
CREATED:20231124T183133Z
LAST-MODIFIED:20231201T223447Z
UID:59628-1701129600-1704067199@creatineinfo.org
SUMMARY:Holiday Heroes 2023
DESCRIPTION:Holiday Heroes ACD’s most important fundraising event of the year! Our goal is to raise $350\,000 for our exciting 2024 research initiatives. Be a part of this community effort and help change lives for those living with CTD\, AGAT\, and GAMT! The Holiday Heroes campaign runs from November 28 to December 31\, 2023 \nClick here to donate today. \nJoin our fundraiser!
URL:https://creatineinfo.org/event/holiday-heroes-launch/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240615
DTEND;VALUE=DATE:20240616
DTSTAMP:20260510T134858
CREATED:20231201T222114Z
LAST-MODIFIED:20240229T195304Z
UID:59753-1718409600-1718495999@creatineinfo.org
SUMMARY:Walk For Strength 2024
DESCRIPTION:Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of a community that is committed to building strength and changing lives! \nClick here to learn more about the Walk For Strength. \nSubscribe to receive updates about upcoming ACD events. 
URL:https://creatineinfo.org/event/walk-for-strength-2024/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240629
DTEND;VALUE=DATE:20240701
DTSTAMP:20260510T134858
CREATED:20231201T223214Z
LAST-MODIFIED:20240229T194948Z
UID:59766-1719619200-1719791999@creatineinfo.org
SUMMARY:2024 CCDS Scientific + Patient Symposium in Salt Lake City\, UT
DESCRIPTION:The 2024 CCDS Scientific + Patient Symposium will be held at the Little America Hotel in Salt Lake City\, Utah. Talks will be presented all day June 29 & 30. We recommend arriving June 28 or earlier and departing July 1 or later. We strongly suggest that you reserve your hotel room(s) as soon as possible. All rooms\, especially connecting family rooms\, are very limited. \nLearn more about the 2024 Symposium. \nSymposium Registration\nSymposium registration is now open! Register by March 15 for the early-bird discount. Click here to register. \nHotel Information\nPlease stay at the Little America Hotel and book in our room block which has a discounted rate of *$169 per night\, is in the main hotel building\, and has the largest size rooms. Use this reservation link or call the hotel directly at +1-800-437-5288 and tell them you are booking in the “Association for Creatine Deficiencies” block. There is no upfront cost to reserve a hotel room. If you are in need of connecting rooms\, or special accommodations\, please call the hotel to ensure those requests are possible and are noted properly. *The symposium room rate is available 3 days pre and post conference as well.
URL:https://creatineinfo.org/event/symposium-2024/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240906T150000
DTEND;TZID=America/New_York:20240906T160000
DTSTAMP:20260510T134858
CREATED:20240729T165644Z
LAST-MODIFIED:20240904T201616Z
UID:61237-1725634800-1725638400@creatineinfo.org
SUMMARY:PAReNts 2.0 Webinar
DESCRIPTION:[vc_row][vc_column][vc_column_text css=”.vc_custom_1725480943260{margin-bottom: 0px !important;}”] \nAre you interested in participating in PAReNts 2.0 or learning more about the exciting plans for this project? We are hosting a Zoom Webinar on September 6\, 2024 at 3 pm Eastern Time to learn more.\n*We will have 20 spots for caregivers to join this new project and 3 spots for PAReNts 1.0 participants to join again as mentors. \nComplete this short registration form below to sign up and get the webinar link! \n  \n  \n  \n [/vc_column_text][/vc_column][/vc_row][gravityform id=”151″ title=”true” description=”true” ajax=”false”]
URL:https://creatineinfo.org/event/parents2-webinar/
LOCATION:Zoom Webinar
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