BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Association for Creatine Deficiencies - ECPv6.15.19//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Association for Creatine Deficiencies
X-ORIGINAL-URL:https://creatineinfo.org
X-WR-CALDESC:Events for Association for Creatine Deficiencies
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Denver
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20200308T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20201101T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20210314T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20211107T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20220313T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20221106T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20230312T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20231105T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20240310T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20241103T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20220313T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20221106T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20230312T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20231105T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20240310T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20241103T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231128
DTEND;VALUE=DATE:20240101
DTSTAMP:20260430T084919
CREATED:20231124T183133Z
LAST-MODIFIED:20231201T223447Z
UID:59628-1701129600-1704067199@creatineinfo.org
SUMMARY:Holiday Heroes 2023
DESCRIPTION:Holiday Heroes ACD’s most important fundraising event of the year! Our goal is to raise $350\,000 for our exciting 2024 research initiatives. Be a part of this community effort and help change lives for those living with CTD\, AGAT\, and GAMT! The Holiday Heroes campaign runs from November 28 to December 31\, 2023 \nClick here to donate today. \nJoin our fundraiser!
URL:https://creatineinfo.org/event/holiday-heroes-launch/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231117T150000
DTEND;TZID=America/New_York:20231117T160000
DTSTAMP:20260430T084919
CREATED:20231102T230005Z
LAST-MODIFIED:20231102T230737Z
UID:59549-1700233200-1700236800@creatineinfo.org
SUMMARY:Community Chat Series: Dr. Steve Baker
DESCRIPTION:[vc_row][vc_column][vc_single_image image=”59552″ img_size=”800×450″][vc_column_text]ACD is launching a “Community Chat” series of meetings in which we will discuss a topic with the community\, have ‘Ask Me Anything’ meetings with researchers\, and more! Our first meeting will be with Dr. Steven Baker to learn about the progress his team has made in year 1 of the Creatine Deficiency Research Center and to hear their plans for research in year 2. \nJoin us on November 17 at 3pm Eastern Time. The meeting will be broadcast on Facebook live and we will be watching the chat for questions so be sure to join us live! Our Facebook page is “Association for Creatine Deficiencies.”[/vc_column_text][vc_btn title=”Sign up for this Community Chat event” link=”url:https%3A%2F%2Fcreatineinfo.org%2Fevent%2Fcommunity-chat-series-dr-steve-baker%2F|title:Sign%20up%20for%20Community%20Chat|target:_blank”][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/community-chat-series-dr-steve-baker/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20231006T130000
DTEND;TZID=America/Denver:20231006T143000
DTSTAMP:20260430T084919
CREATED:20230916T171614Z
LAST-MODIFIED:20230926T070108Z
UID:59383-1696597200-1696602600@creatineinfo.org
SUMMARY:CCDS Expert Panel Webinar #4
DESCRIPTION:Learn more about the Expert Panel webinar series and register here. \n 
URL:https://creatineinfo.org/event/ccds-expert-panel-webinar-4/
CATEGORIES:Community Events
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230825
DTEND;VALUE=DATE:20230827
DTSTAMP:20260430T084919
CREATED:20230324T193043Z
LAST-MODIFIED:20230505T163451Z
UID:58698-1692921600-1693094399@creatineinfo.org
SUMMARY:2023 CCDS Virtual Conference - Main Sessions
DESCRIPTION:Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and advancements. \nVisit the conference page and register today by clicking here!
URL:https://creatineinfo.org/event/2023-ccds-virtual-conference-main/
CATEGORIES:Symposium
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230818T130000
DTEND;TZID=America/Denver:20230818T160000
DTSTAMP:20260430T084919
CREATED:20230505T163323Z
LAST-MODIFIED:20230505T163626Z
UID:58957-1692363600-1692374400@creatineinfo.org
SUMMARY:2023 CCDS Virtual Conference - Caregiver Session
DESCRIPTION:The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling experience\, sleep training for CCDS patients\, and identifying and managing CCDS behavior challenges. \nVisit the conference page and register today by clicking here!
URL:https://creatineinfo.org/event/2023-ccds-virtual-conference-caregiver/
CATEGORIES:Community Events,Symposium
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230728T120000
DTEND;TZID=America/New_York:20230728T131500
DTSTAMP:20260430T084919
CREATED:20230719T174632Z
LAST-MODIFIED:20230719T182810Z
UID:59110-1690545600-1690550100@creatineinfo.org
SUMMARY:GAMT Webinar
DESCRIPTION:GAMT Webinar Announcement
URL:https://creatineinfo.org/event/gamt-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230708T120000
DTEND;TZID=America/New_York:20230708T150000
DTSTAMP:20260430T084919
CREATED:20230615T031923Z
LAST-MODIFIED:20230620T201748Z
UID:59050-1688817600-1688828400@creatineinfo.org
SUMMARY:Sibshops 7/8
DESCRIPTION:Learn more and register here.
URL:https://creatineinfo.org/event/sibshops-7-8/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230624T120000
DTEND;TZID=America/New_York:20230624T150000
DTSTAMP:20260430T084919
CREATED:20230615T033232Z
LAST-MODIFIED:20230615T033232Z
UID:59053-1687608000-1687618800@creatineinfo.org
SUMMARY:Sibshops 10/7
DESCRIPTION:Learn more and register here.
URL:https://creatineinfo.org/event/sibshops-10-7/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230610
DTEND;VALUE=DATE:20230611
DTSTAMP:20260430T084919
CREATED:20230205T001250Z
LAST-MODIFIED:20230324T192925Z
UID:58297-1686355200-1686441599@creatineinfo.org
SUMMARY:Walk for Strength 2023
DESCRIPTION:Visit creatineinfo.org/walk to learn more!
URL:https://creatineinfo.org/event/wfs-2023/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230602T120000
DTEND;TZID=America/New_York:20230602T133000
DTSTAMP:20260430T084919
CREATED:20230205T000415Z
LAST-MODIFIED:20230205T002644Z
UID:58295-1685707200-1685712600@creatineinfo.org
SUMMARY:CCDS Expert Panel Community Webinar
DESCRIPTION:[vc_row][vc_column][vc_column_text] \n \nLearn more and register for the webinar series here. \n[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/ccds-expert-panel-community-webinar-2-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230330T120000
DTEND;TZID=America/Los_Angeles:20230330T123000
DTSTAMP:20260430T084919
CREATED:20230324T192715Z
LAST-MODIFIED:20230324T192715Z
UID:58695-1680177600-1680179400@creatineinfo.org
SUMMARY:Community Update Webinar
DESCRIPTION:Join us on March 30 at 12 noon Pacific for a 30-minute community update and hear from ACD Executive Director Heidi Wallis as she shares about the Creatine Deficiency Research Center and other exciting initiatives for 2023! Sign up today. This will be recorded and made available afterwards! \nSign up here. After registering\, you will receive a confirmation email containing information about joining the webinar.
URL:https://creatineinfo.org/event/community-update-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230228
DTEND;VALUE=DATE:20230301
DTSTAMP:20260430T084919
CREATED:20230204T235114Z
LAST-MODIFIED:20230204T235229Z
UID:58289-1677542400-1677628799@creatineinfo.org
SUMMARY:Rare Disease Day 2023
DESCRIPTION:
URL:https://creatineinfo.org/event/rare-disease-day-2023/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230225T120000
DTEND;TZID=America/New_York:20230225T150000
DTSTAMP:20260430T084919
CREATED:20230204T235906Z
LAST-MODIFIED:20230205T002532Z
UID:58293-1677326400-1677337200@creatineinfo.org
SUMMARY:CCDS Sibshops
DESCRIPTION:Calling all CCDS siblings! We’re excited to announce that ACD is partnering with Sibshops to provide a space for siblings to connect and receive peer support in a fun environment. Sign up today! https://creatineinfo.org/sibshops/  \nUPCOMING SESSIONS\nSaturday\, February 25th\nSaturday\, April 8th \nEach date will have three times:\n12:00-12:45 ET youngest group (ages 5-7)\n1:00-2:00 ET middle group (ages 8-12)\n2:00-3:00 ET oldest group (ages 13+)
URL:https://creatineinfo.org/event/ccds-sibshops-2-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230201T130000
DTEND;TZID=America/Denver:20230201T140000
DTSTAMP:20260430T084919
CREATED:20221031T023242Z
LAST-MODIFIED:20221031T023242Z
UID:57976-1675256400-1675260000@creatineinfo.org
SUMMARY:CCDS Expert Panel Community Webinar
DESCRIPTION:[vc_row][vc_column][vc_column_text] \n \nLearn more and register for the webinar series here. \n[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/ccds-expert-panel-community-webinar-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230201T080000
DTEND;TZID=America/Denver:20230201T170000
DTSTAMP:20260430T084919
CREATED:20230109T171812Z
LAST-MODIFIED:20230120T024428Z
UID:58166-1675238400-1675270800@creatineinfo.org
SUMMARY:CCDS Day 2023
DESCRIPTION:Learn how you can participate in the #CCDSDay2023 campaign here.
URL:https://creatineinfo.org/event/ccds-day-2023-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230124T080000
DTEND;TZID=America/Denver:20230124T131500
DTSTAMP:20260430T084919
CREATED:20220811T192716Z
LAST-MODIFIED:20221129T214852Z
UID:57466-1674547200-1674566100@creatineinfo.org
SUMMARY:Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on Cerebral Creatine Deficiency Syndromes (CCDS)
DESCRIPTION:Learn more and register here.
URL:https://creatineinfo.org/event/el-pfdd-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230114T120000
DTEND;TZID=America/Denver:20230114T160000
DTSTAMP:20260430T084919
CREATED:20220527T032750Z
LAST-MODIFIED:20221128T212946Z
UID:54409-1673697600-1673712000@creatineinfo.org
SUMMARY:CCDS Sibshops
DESCRIPTION:Calling all CCDS siblings! We’re excited to announce that ACD is partnering with Sibshops to provide a space for siblings to connect and receive peer support in a fun environment. Sign up today! https://creatineinfo.org/sibshops/  \nUPCOMING SESSIONS\nSaturday\, January 14th\nSaturday\, February 25th\nSaturday\, April 8th \nEach date will have three times:\n2:00-2:45 ET youngest group\n3:00-4:00 ET middle group\n4:00-5:00 ET oldest group
URL:https://creatineinfo.org/event/ccds-sibshops-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221208T143000
DTEND;TZID=America/New_York:20221208T153000
DTSTAMP:20260430T084919
CREATED:20220915T205605Z
LAST-MODIFIED:20221128T212554Z
UID:57611-1670509800-1670513400@creatineinfo.org
SUMMARY:EL-PFDD Introductory Webinar
DESCRIPTION:Join us on Dec 8\, 2022 at 2:30 PM ET for an introductory webinar aimed at providing an overview of EL-PFDD meetings\, including more about the format\, purpose\, and goals of the January 2023 CCDS EL-PFDD. \nLearn more and register here.
URL:https://creatineinfo.org/event/el-pfdd-introductory-webinar-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221129T080000
DTEND;TZID=America/Denver:20221231T170000
DTSTAMP:20260430T084919
CREATED:20220811T192531Z
LAST-MODIFIED:20221109T195350Z
UID:57463-1669708800-1672506000@creatineinfo.org
SUMMARY:Holiday Heroes 2022
DESCRIPTION:[vc_row][vc_column][vc_column_text] \nHoliday Heroes 2022 is here!\nLearn more about this year’s campaign goals and how you can participate here.[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/holiday-heroes-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221101T130000
DTEND;TZID=America/Denver:20221101T140000
DTSTAMP:20260430T084919
CREATED:20220811T193316Z
LAST-MODIFIED:20220911T042143Z
UID:57468-1667307600-1667311200@creatineinfo.org
SUMMARY:CCDS Expert Panel Community Webinar
DESCRIPTION:[vc_row][vc_column][vc_column_text] \n \nLearn more and register for the webinar series here. \n[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/ccds-expert-panel-community-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221014T130000
DTEND;TZID=America/Denver:20221014T143000
DTSTAMP:20260430T084919
CREATED:20220913T115154Z
LAST-MODIFIED:20220915T204958Z
UID:57575-1665752400-1665757800@creatineinfo.org
SUMMARY:Virtual Town Hall with Ultragenyx: Updates on the Vigilan Study
DESCRIPTION:Do you have questions about the recent changes announced by Ultragenyx to the Vigilan Natural History Study? ACD is hosting a virtual town hall event on Friday\, Oct. 14\, from 12 noon – 1:30pm PT with Ultragenyx representatives and Dr. Judi Miller\, the Coordinating Principal Investigator for the Vigilan study\, to answer your questions. You can read a letter from Ultragenyx announcing changes to the Vigilan study here. Please register and submit your questions here by Friday\, September 23.
URL:https://creatineinfo.org/event/ugx-vigilan-update/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220820
DTEND;VALUE=DATE:20220821
DTSTAMP:20260430T084919
CREATED:20220415T180703Z
LAST-MODIFIED:20220518T164740Z
UID:20526-1660953600-1661039999@creatineinfo.org
SUMMARY:Walk for Strength 2022
DESCRIPTION:Join us on Saturday\, August 20th\, 2022 for the ACD’s 7th annual Walk for Strength!\nVisit our Walk for Strength 2022 page to learn more\, set up your team and register!
URL:https://creatineinfo.org/event/wfs-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220626
DTEND;VALUE=DATE:20220628
DTSTAMP:20260430T084919
CREATED:20210917T155907Z
LAST-MODIFIED:20221205T163654Z
UID:19751-1656201600-1656374399@creatineinfo.org
SUMMARY:2022 CCDS Scientific + Patient Symposium
DESCRIPTION:[vc_row][vc_column][vc_column_text]This conference is intended for members of the scientific and medical community\, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT\, CTD\, and AGAT disorders\, allowing for a deeper understanding of CCDS in the medical community and helping pave the way for innovation through collaboration.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_btn title=”View Talk Recordings” align=”center” link=”url:https%3A%2F%2Fwww.youtube.com%2Fplaylist%3Flist%3DPL5UTAk2ll_fzBHZ_OnG8cxKzzjnm4g-r4″][vc_btn title=”Full Program\, Abstracts & Bios” align=”center” link=”url:http%3A%2F%2Fcreatineinfo.org%2Fwp-content%2Fuploads%2F2022%2F06%2F2022-CCDS-Symposium-Program-Agenda-Abstracts.pdf|target:_blank”][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/2022-ccds-scientific-patient-symposium/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20220617T100000
DTEND;TZID=America/Denver:20220617T110000
DTSTAMP:20260430T084919
CREATED:20220527T032134Z
LAST-MODIFIED:20220614T163710Z
UID:54407-1655460000-1655463600@creatineinfo.org
SUMMARY:Symposium: "What to Expect" Webinar
DESCRIPTION:[vc_row][vc_column][vc_column_text] \n“What to Expect at the Symposium” Zoom gathering! June 17th\, 10:00 AM or 3:30 PM MDT. We’ll be sharing all the details of the symposium and Utah tips to help you feel prepared for the big event. Register today! creatineinfo.org/symposium-webinar The webinar recording will be made available for those unable to attend.[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/symposium-what-to-expect-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
DTSTAMP:20260430T084919
CREATED:20210917T160559Z
LAST-MODIFIED:20210917T160657Z
UID:19760-1646006400-1646092799@creatineinfo.org
SUMMARY:Rare Disease Day
DESCRIPTION:
URL:https://creatineinfo.org/event/rare-disease-day-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20220204T080000
DTEND;TZID=America/Denver:20220204T170000
DTSTAMP:20260430T084919
CREATED:20220204T195528Z
LAST-MODIFIED:20220204T195528Z
UID:20244-1643961600-1643994000@creatineinfo.org
SUMMARY:2/11 PaReNts Webinar
DESCRIPTION:Register for the webinar here. \nTo learn more about the PaReNts project\, visit our informational webpage.
URL:https://creatineinfo.org/event/2-11-parents-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20220204T080000
DTEND;TZID=America/Denver:20220204T170000
DTSTAMP:20260430T084919
CREATED:20220204T195420Z
LAST-MODIFIED:20220204T195420Z
UID:20242-1643961600-1643994000@creatineinfo.org
SUMMARY:2/4 PaReNts Webinar
DESCRIPTION:Register for the webinar here. \nTo learn more about the PaReNts project\, visit our informational webpage.
URL:https://creatineinfo.org/event/2-4-parents-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220201
DTEND;VALUE=DATE:20220202
DTSTAMP:20260430T084919
CREATED:20210917T160514Z
LAST-MODIFIED:20220201T174554Z
UID:19758-1643673600-1643759999@creatineinfo.org
SUMMARY:CCDS Day
DESCRIPTION:[vc_row][vc_column][vc_column_text]February 1st is #CCDSDay2022 and we want to share your story with the world. Send us a picture of your family and complete the following quote: “CCDS research success means…” Complete your submission here and we’ll raise our voices in 2022 to let researchers around the world know that our community is strong and ready to support their work.[/vc_column_text][/vc_column][/vc_row][gravityform id=”104″ title=”false” description=”true” ajax=”false”]
URL:https://creatineinfo.org/event/ccds-day-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20211217T150000
DTEND;TZID=America/Denver:20211217T160000
DTSTAMP:20260430T084919
CREATED:20211109T154758Z
LAST-MODIFIED:20211109T154758Z
UID:19936-1639753200-1639756800@creatineinfo.org
SUMMARY:Virtual Town Hall: A Discussion with Ultragenyx
DESCRIPTION:Do you have questions about the recent changes announced by Ultragenyx to their CTD clinical development program? ACD is hosting a virtual town hall event on December 17th from 2-3 pm PT with Ultragenyx representatives to answer your questions. We will hear from the following Ultragenyx team members: \n\nMarcus Andrews\, PhD\, Senior Director\, Non-Clinical Sciences\, Pharmacology/Toxicology\nHilary Beggs\, PhD\, Executive Director\, Program Team Leader\nMelanie Brandabur\, MD\, Senior Medical Director\, Global Clinical Development\n\nRegister and submit your questions here.
URL:https://creatineinfo.org/event/virtual-town-hall-a-discussion-with-ultragenyx/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211101
DTEND;VALUE=DATE:20220102
DTSTAMP:20260430T084919
CREATED:20210917T160416Z
LAST-MODIFIED:20211029T202227Z
UID:19756-1635724800-1641081599@creatineinfo.org
SUMMARY:2021 Holiday Heroes
DESCRIPTION:[vc_row][vc_column][vc_column_text] \nLearn more about Holiday Heroes 2021 and make a donation today!\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_btn title=”Visit the Holiday Heroes 2021 Site” size=”lg” align=”center” link=”url:https%3A%2F%2Fcreatineinfo.org%2Fholiday-heroes%2F”][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/2021-holiday-heroes/
END:VEVENT
END:VCALENDAR