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X-WR-CALNAME:Association for Creatine Deficiencies
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DTSTART;VALUE=DATE:20170930
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UID:4542-1506729600-1506815999@creatineinfo.org
SUMMARY:Rockin' For A Cause
DESCRIPTION:Rockin’ For A Cause\nDripping Springs\, TX\nSaturday\, September 30\, 2017\n\nACD’s first ever benefit concert\, “Rockin’ for a Cause”\, was held in Austin\, Texas at the Mercer Street Dance Hall. Live music was provided by Worn Out Souls and headliner Micky and the Motorcars. The event brought in over 200 people in support of CCDS and raised over $52\,000! All proceeds from Rockin’ for a Cause go directly toward supporting programs for research\, education\, newborn screening advocacy efforts\, and patient support initiatives.
URL:https://creatineinfo.org/event/rockin-for-a-cause-2/
CATEGORIES:Exhibits & Workshops
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DTSTART;VALUE=DATE:20170610
DTEND;VALUE=DATE:20170611
DTSTAMP:20260510T150650
CREATED:20180124T045820Z
LAST-MODIFIED:20180124T045904Z
UID:4529-1497052800-1497139199@creatineinfo.org
SUMMARY:Walk For Strength
DESCRIPTION:Saturday\, June 10th\nHost a local walk\, join an existing team\, or make a donation of support! Here’s how: \n[columns]\n[column layout=”two border”] \nTo host a local walk:\n\nChoose a Team Name\, Walk Location\, and Start Time.\nLocations may include neighborhoods\, parks\, hike and bike trails\, school tracks\, etc.\nGet Registered!\nRegister Here \nBe sure to enter your Team Name and share it with friends and family that plan to join your team. Get registered by May 15th. **Registrations received after May 15th will not include a shirt.\nNote: Shirts will be sent to the host to distribute on walk day.\nInvite Your Friends and Neighbors to Join.\nIdeas include: Create a Facebook page for your team or send out a letter or email to friends and loved ones that you would like them to join in your walk. Explain why you are walking and what their support means to you! No team is too small! Contact Heidi with questions. If your group is large\, we can help with the logistics.\nWalk on June 10th & Take Pictures to Share!\nShare your walk day pics by emailing them to heidi@creatineinfo.org.\n\n[/column]\n[column layout=”two border last”] \nTo join an existing team or walk alone:\n\nGet Registered!\nRegister Here \nBe sure to enter the *Team Name created by your walk host or enter “SOLO” if you’ll be walking alone.\nGet Your Gear.\nIf you are walking with a team\, your shirt will be sent to the host to distribute on walk day. *If you are walking alone\, enter “SOLO” for your team name\, and your shirt will be mailed directly to you.\n\nShow of Support\nIf your friends and family can’t make it on walk day\, but want to support your team\, they can \nDonate Here \nto make a donation. Choose “Walk for Strength” and enter the team’s name in the “in honor or memory of” section. \n[/column]\n[/columns]
URL:https://creatineinfo.org/event/walk-for-strength-2/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://creatineinfo.org/wp-content/uploads/2018/01/Screen-Shot-2018-01-23-at-10.57.38-PM.png
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DTSTART;VALUE=DATE:20130612
DTEND;VALUE=DATE:20130616
DTSTAMP:20260510T150650
CREATED:20180124T052041Z
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UID:4581-1370995200-1371340799@creatineinfo.org
SUMMARY:Exhibit at the UMDF Mitochondrial Medicine 2013 Symposium
DESCRIPTION:Exhibit at the UMDF Mitochondrial Medicine 2013 Symposium\nNewport Beach\, California\nJune 12 – 15\, 2013 \nThe ACD was thrilled to exhibit at the UMDF Mitochondrial Medicine 2013 Symposium that was held in Newport Beach\, California. \nThis symposium encourages the exchange of information and cultivates networking among physicians\, researchers\, patients and families for mitochondrial diseases. Linda Cooper and Kim Tuminello were in attendance for the ACD and met many wonderful people! They had a very active booth and were able to connect with professionals that gave them guidance related to patient advocacy groups. The most frequently shared advice to the ACD was to increase our patient registry! This is a must in accomplishing our goals. \nWe take this information to heart and will actively work on connecting with other organizations\, the medical community at large\, lab facilities\, patients\, and families to improve our patient registry. The ACD will continue to exhibit at future conferences that connect with Cerebral Creatine Deficiency Syndromes. \nLook who else was at the UMDF Symposium.
URL:https://creatineinfo.org/event/exhibit-at-the-umdf-mitochondrial-medicine-2013-symposium/
CATEGORIES:Exhibits & Workshops
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