Association for Creatine Deficiencies

FDA Webinar: The Clinical Trials Process
2021-10-22 13:00 - 14:00 (America/Denver)
Register today! The FDA is presenting an important webinar to the CCDS community Friday, October 22nd, from 3:00-4:00 EST. Dr. Sheila Farrell, MD, MPH from the FDA’s Center for Drug Evaluation and Research will discuss the clinical trials process.
View the recording here.

2021 Holiday Heroes
2021-11-01 - 2022-01-01
Learn more about Holiday Heroes 2021 and make a donation today!

2022 CCDS Scientific + Patient Symposium
2022-06-26 - 2022-06-27
This conference is intended for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT, CTD, and AGAT disorders, allowing for a deeper understanding of CCDS in the medical community and helping pave the way for innovation through collaboration.

Walk for Strength 2022
2022-08-20
Join us on Saturday, August 20th, 2022 for the ACD’s 7th annual Walk for Strength!
Visit our Walk for Strength 2022 page to learn more, set up your team and register!

Holiday Heroes 2022
2022-11-29 08:00 - 2022-12-31 17:00 (America/Denver)
Holiday Heroes 2022 is here!
Learn more about this year’s campaign goals and how you can participate here.

Walk for Strength 2023
2023-06-10
Visit creatineinfo.org/walk to learn more!

2023 CCDS Virtual Conference - Caregiver Session
2023-08-18 13:00 - 16:00 (America/Denver)
The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling experience, sleep training for CCDS patients, and identifying and managing CCDS behavior challenges.
Visit the conference page and register today by clicking here!

2023 CCDS Virtual Conference - Main Sessions
2023-08-25 - 2023-08-26
Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and advancements.
Visit the conference page and register today by clicking here!

Holiday Heroes 2023
2023-11-28 - 2023-12-31
Holiday Heroes ACD’s most important fundraising event of the year! Our goal is to raise $350,000 for our exciting 2024 research initiatives. Be a part of this community effort and help change lives for those living with CTD, AGAT, and GAMT! The Holiday Heroes campaign runs from November 28 to December 31, 2023
Click here to donate today.
Join our fundraiser!

Walk For Strength 2024
2024-06-15
Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of a community that is committed to building strength and changing lives!
Click here to learn more about the Walk For Strength.
Subscribe to receive updates about upcoming ACD events.

2024 CCDS Scientific + Patient Symposium in Salt Lake City, UT
2024-06-29 - 2024-06-30
The 2024 CCDS Scientific + Patient Symposium will be held at the Little America Hotel in Salt Lake City, Utah. Talks will be presented all day June 29 & 30. We recommend arriving June 28 or earlier and departing July 1 or later. We strongly suggest that you reserve your hotel room(s) as soon as possible. All rooms, especially connecting family rooms, are very limited.
Learn more about the 2024 Symposium.
Symposium Registration
Symposium registration is now open! Register by March 15 for the early-bird discount. Click here to register.
Hotel Information
Please stay at the Little America Hotel and book in our room block which has a discounted rate of *$169 per night, is in the main hotel building, and has the largest size rooms. Use this reservation link or call the hotel directly at +1-800-437-5288 and tell them you are booking in the “Association for Creatine Deficiencies” block. There is no upfront cost to reserve a hotel room. If you are in need of connecting rooms, or special accommodations, please call the hotel to ensure those requests are possible and are noted properly. *The symposium room rate is available 3 days pre and post conference as well.

PAReNts 2.0 Webinar
2024-09-06 15:00 - 16:00 (America/New_York) | Zoom Webinar
Are you interested in participating in PAReNts 2.0 or learning more about the exciting plans for this project? We are hosting a Zoom Webinar on September 6, 2024 at 3 pm Eastern Time to learn more.
*We will have 20 spots for caregivers to join this new project and 3 spots for PAReNts 1.0 participants to join again as mentors.
Complete this short registration form below to sign up and get the webinar link!
