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X-WR-CALNAME:Association for Creatine Deficiencies
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X-WR-CALDESC:Events for Association for Creatine Deficiencies
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BEGIN:DAYLIGHT
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TZOFFSETTO:-0400
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DTSTART:20210314T070000
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TZOFFSETTO:-0500
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DTSTART:20211107T060000
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BEGIN:DAYLIGHT
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TZOFFSETTO:-0400
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DTSTART:20220313T070000
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TZOFFSETTO:-0500
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BEGIN:DAYLIGHT
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DTSTART:20230312T070000
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TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
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BEGIN:STANDARD
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DTSTART:20241103T060000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230330T120000
DTEND;TZID=America/Los_Angeles:20230330T123000
DTSTAMP:20260430T094808
CREATED:20230324T192715Z
LAST-MODIFIED:20230324T192715Z
UID:58695-1680177600-1680179400@creatineinfo.org
SUMMARY:Community Update Webinar
DESCRIPTION:Join us on March 30 at 12 noon Pacific for a 30-minute community update and hear from ACD Executive Director Heidi Wallis as she shares about the Creatine Deficiency Research Center and other exciting initiatives for 2023! Sign up today. This will be recorded and made available afterwards! \nSign up here. After registering\, you will receive a confirmation email containing information about joining the webinar.
URL:https://creatineinfo.org/event/community-update-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230228
DTEND;VALUE=DATE:20230301
DTSTAMP:20260430T094808
CREATED:20230204T235114Z
LAST-MODIFIED:20230204T235229Z
UID:58289-1677542400-1677628799@creatineinfo.org
SUMMARY:Rare Disease Day 2023
DESCRIPTION:
URL:https://creatineinfo.org/event/rare-disease-day-2023/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230225T120000
DTEND;TZID=America/New_York:20230225T150000
DTSTAMP:20260430T094808
CREATED:20230204T235906Z
LAST-MODIFIED:20230205T002532Z
UID:58293-1677326400-1677337200@creatineinfo.org
SUMMARY:CCDS Sibshops
DESCRIPTION:Calling all CCDS siblings! We’re excited to announce that ACD is partnering with Sibshops to provide a space for siblings to connect and receive peer support in a fun environment. Sign up today! https://creatineinfo.org/sibshops/  \nUPCOMING SESSIONS\nSaturday\, February 25th\nSaturday\, April 8th \nEach date will have three times:\n12:00-12:45 ET youngest group (ages 5-7)\n1:00-2:00 ET middle group (ages 8-12)\n2:00-3:00 ET oldest group (ages 13+)
URL:https://creatineinfo.org/event/ccds-sibshops-2-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230201T130000
DTEND;TZID=America/Denver:20230201T140000
DTSTAMP:20260430T094808
CREATED:20221031T023242Z
LAST-MODIFIED:20221031T023242Z
UID:57976-1675256400-1675260000@creatineinfo.org
SUMMARY:CCDS Expert Panel Community Webinar
DESCRIPTION:[vc_row][vc_column][vc_column_text] \n \nLearn more and register for the webinar series here. \n[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/ccds-expert-panel-community-webinar-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230201T080000
DTEND;TZID=America/Denver:20230201T170000
DTSTAMP:20260430T094808
CREATED:20230109T171812Z
LAST-MODIFIED:20230120T024428Z
UID:58166-1675238400-1675270800@creatineinfo.org
SUMMARY:CCDS Day 2023
DESCRIPTION:Learn how you can participate in the #CCDSDay2023 campaign here.
URL:https://creatineinfo.org/event/ccds-day-2023-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230124T080000
DTEND;TZID=America/Denver:20230124T131500
DTSTAMP:20260430T094808
CREATED:20220811T192716Z
LAST-MODIFIED:20221129T214852Z
UID:57466-1674547200-1674566100@creatineinfo.org
SUMMARY:Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on Cerebral Creatine Deficiency Syndromes (CCDS)
DESCRIPTION:Learn more and register here.
URL:https://creatineinfo.org/event/el-pfdd-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230114T120000
DTEND;TZID=America/Denver:20230114T160000
DTSTAMP:20260430T094808
CREATED:20220527T032750Z
LAST-MODIFIED:20221128T212946Z
UID:54409-1673697600-1673712000@creatineinfo.org
SUMMARY:CCDS Sibshops
DESCRIPTION:Calling all CCDS siblings! We’re excited to announce that ACD is partnering with Sibshops to provide a space for siblings to connect and receive peer support in a fun environment. Sign up today! https://creatineinfo.org/sibshops/  \nUPCOMING SESSIONS\nSaturday\, January 14th\nSaturday\, February 25th\nSaturday\, April 8th \nEach date will have three times:\n2:00-2:45 ET youngest group\n3:00-4:00 ET middle group\n4:00-5:00 ET oldest group
URL:https://creatineinfo.org/event/ccds-sibshops-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221208T143000
DTEND;TZID=America/New_York:20221208T153000
DTSTAMP:20260430T094808
CREATED:20220915T205605Z
LAST-MODIFIED:20221128T212554Z
UID:57611-1670509800-1670513400@creatineinfo.org
SUMMARY:EL-PFDD Introductory Webinar
DESCRIPTION:Join us on Dec 8\, 2022 at 2:30 PM ET for an introductory webinar aimed at providing an overview of EL-PFDD meetings\, including more about the format\, purpose\, and goals of the January 2023 CCDS EL-PFDD. \nLearn more and register here.
URL:https://creatineinfo.org/event/el-pfdd-introductory-webinar-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221129T080000
DTEND;TZID=America/Denver:20221231T170000
DTSTAMP:20260430T094808
CREATED:20220811T192531Z
LAST-MODIFIED:20221109T195350Z
UID:57463-1669708800-1672506000@creatineinfo.org
SUMMARY:Holiday Heroes 2022
DESCRIPTION:[vc_row][vc_column][vc_column_text] \nHoliday Heroes 2022 is here!\nLearn more about this year’s campaign goals and how you can participate here.[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/holiday-heroes-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221101T130000
DTEND;TZID=America/Denver:20221101T140000
DTSTAMP:20260430T094808
CREATED:20220811T193316Z
LAST-MODIFIED:20220911T042143Z
UID:57468-1667307600-1667311200@creatineinfo.org
SUMMARY:CCDS Expert Panel Community Webinar
DESCRIPTION:[vc_row][vc_column][vc_column_text] \n \nLearn more and register for the webinar series here. \n[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/ccds-expert-panel-community-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221014T130000
DTEND;TZID=America/Denver:20221014T143000
DTSTAMP:20260430T094808
CREATED:20220913T115154Z
LAST-MODIFIED:20220915T204958Z
UID:57575-1665752400-1665757800@creatineinfo.org
SUMMARY:Virtual Town Hall with Ultragenyx: Updates on the Vigilan Study
DESCRIPTION:Do you have questions about the recent changes announced by Ultragenyx to the Vigilan Natural History Study? ACD is hosting a virtual town hall event on Friday\, Oct. 14\, from 12 noon – 1:30pm PT with Ultragenyx representatives and Dr. Judi Miller\, the Coordinating Principal Investigator for the Vigilan study\, to answer your questions. You can read a letter from Ultragenyx announcing changes to the Vigilan study here. Please register and submit your questions here by Friday\, September 23.
URL:https://creatineinfo.org/event/ugx-vigilan-update/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220820
DTEND;VALUE=DATE:20220821
DTSTAMP:20260430T094808
CREATED:20220415T180703Z
LAST-MODIFIED:20220518T164740Z
UID:20526-1660953600-1661039999@creatineinfo.org
SUMMARY:Walk for Strength 2022
DESCRIPTION:Join us on Saturday\, August 20th\, 2022 for the ACD’s 7th annual Walk for Strength!\nVisit our Walk for Strength 2022 page to learn more\, set up your team and register!
URL:https://creatineinfo.org/event/wfs-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220626
DTEND;VALUE=DATE:20220628
DTSTAMP:20260430T094808
CREATED:20210917T155907Z
LAST-MODIFIED:20221205T163654Z
UID:19751-1656201600-1656374399@creatineinfo.org
SUMMARY:2022 CCDS Scientific + Patient Symposium
DESCRIPTION:[vc_row][vc_column][vc_column_text]This conference is intended for members of the scientific and medical community\, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT\, CTD\, and AGAT disorders\, allowing for a deeper understanding of CCDS in the medical community and helping pave the way for innovation through collaboration.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_btn title=”View Talk Recordings” align=”center” link=”url:https%3A%2F%2Fwww.youtube.com%2Fplaylist%3Flist%3DPL5UTAk2ll_fzBHZ_OnG8cxKzzjnm4g-r4″][vc_btn title=”Full Program\, Abstracts & Bios” align=”center” link=”url:http%3A%2F%2Fcreatineinfo.org%2Fwp-content%2Fuploads%2F2022%2F06%2F2022-CCDS-Symposium-Program-Agenda-Abstracts.pdf|target:_blank”][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/2022-ccds-scientific-patient-symposium/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20220617T100000
DTEND;TZID=America/Denver:20220617T110000
DTSTAMP:20260430T094808
CREATED:20220527T032134Z
LAST-MODIFIED:20220614T163710Z
UID:54407-1655460000-1655463600@creatineinfo.org
SUMMARY:Symposium: "What to Expect" Webinar
DESCRIPTION:[vc_row][vc_column][vc_column_text] \n“What to Expect at the Symposium” Zoom gathering! June 17th\, 10:00 AM or 3:30 PM MDT. We’ll be sharing all the details of the symposium and Utah tips to help you feel prepared for the big event. Register today! creatineinfo.org/symposium-webinar The webinar recording will be made available for those unable to attend.[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/symposium-what-to-expect-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
DTSTAMP:20260430T094808
CREATED:20210917T160559Z
LAST-MODIFIED:20210917T160657Z
UID:19760-1646006400-1646092799@creatineinfo.org
SUMMARY:Rare Disease Day
DESCRIPTION:
URL:https://creatineinfo.org/event/rare-disease-day-2022/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20220204T080000
DTEND;TZID=America/Denver:20220204T170000
DTSTAMP:20260430T094808
CREATED:20220204T195528Z
LAST-MODIFIED:20220204T195528Z
UID:20244-1643961600-1643994000@creatineinfo.org
SUMMARY:2/11 PaReNts Webinar
DESCRIPTION:Register for the webinar here. \nTo learn more about the PaReNts project\, visit our informational webpage.
URL:https://creatineinfo.org/event/2-11-parents-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20220204T080000
DTEND;TZID=America/Denver:20220204T170000
DTSTAMP:20260430T094808
CREATED:20220204T195420Z
LAST-MODIFIED:20220204T195420Z
UID:20242-1643961600-1643994000@creatineinfo.org
SUMMARY:2/4 PaReNts Webinar
DESCRIPTION:Register for the webinar here. \nTo learn more about the PaReNts project\, visit our informational webpage.
URL:https://creatineinfo.org/event/2-4-parents-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220201
DTEND;VALUE=DATE:20220202
DTSTAMP:20260430T094808
CREATED:20210917T160514Z
LAST-MODIFIED:20220201T174554Z
UID:19758-1643673600-1643759999@creatineinfo.org
SUMMARY:CCDS Day
DESCRIPTION:[vc_row][vc_column][vc_column_text]February 1st is #CCDSDay2022 and we want to share your story with the world. Send us a picture of your family and complete the following quote: “CCDS research success means…” Complete your submission here and we’ll raise our voices in 2022 to let researchers around the world know that our community is strong and ready to support their work.[/vc_column_text][/vc_column][/vc_row][gravityform id=”104″ title=”false” description=”true” ajax=”false”]
URL:https://creatineinfo.org/event/ccds-day-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20211217T150000
DTEND;TZID=America/Denver:20211217T160000
DTSTAMP:20260430T094808
CREATED:20211109T154758Z
LAST-MODIFIED:20211109T154758Z
UID:19936-1639753200-1639756800@creatineinfo.org
SUMMARY:Virtual Town Hall: A Discussion with Ultragenyx
DESCRIPTION:Do you have questions about the recent changes announced by Ultragenyx to their CTD clinical development program? ACD is hosting a virtual town hall event on December 17th from 2-3 pm PT with Ultragenyx representatives to answer your questions. We will hear from the following Ultragenyx team members: \n\nMarcus Andrews\, PhD\, Senior Director\, Non-Clinical Sciences\, Pharmacology/Toxicology\nHilary Beggs\, PhD\, Executive Director\, Program Team Leader\nMelanie Brandabur\, MD\, Senior Medical Director\, Global Clinical Development\n\nRegister and submit your questions here.
URL:https://creatineinfo.org/event/virtual-town-hall-a-discussion-with-ultragenyx/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211101
DTEND;VALUE=DATE:20220102
DTSTAMP:20260430T094808
CREATED:20210917T160416Z
LAST-MODIFIED:20211029T202227Z
UID:19756-1635724800-1641081599@creatineinfo.org
SUMMARY:2021 Holiday Heroes
DESCRIPTION:[vc_row][vc_column][vc_column_text] \nLearn more about Holiday Heroes 2021 and make a donation today!\n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_btn title=”Visit the Holiday Heroes 2021 Site” size=”lg” align=”center” link=”url:https%3A%2F%2Fcreatineinfo.org%2Fholiday-heroes%2F”][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/2021-holiday-heroes/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20211022T130000
DTEND;TZID=America/Denver:20211022T140000
DTSTAMP:20260430T094808
CREATED:20211007T201128Z
LAST-MODIFIED:20220917T204957Z
UID:19800-1634907600-1634911200@creatineinfo.org
SUMMARY:FDA Webinar: The Clinical Trials Process
DESCRIPTION:Register today! The FDA is presenting an important webinar to the CCDS community Friday\, October 22nd\, from 3:00-4:00 EST. Dr. Sheila Farrell\, MD\, MPH from the FDA’s Center for Drug Evaluation and Research will discuss the clinical trials process. \nView the recording here.
URL:https://creatineinfo.org/event/fda-webinar-the-clinical-trials-process-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210910
DTEND;VALUE=DATE:20210912
DTSTAMP:20260430T094808
CREATED:20210413T124055Z
LAST-MODIFIED:20210908T162912Z
UID:18734-1631232000-1631404799@creatineinfo.org
SUMMARY:2021 CCDS Virtual Conference
DESCRIPTION:[vc_row][vc_column][vc_column_text]The 2021 CCDS Virtual Conference will be held virtually on September 10th and 11th\, 2021. The meeting will cover two days of scientific talks by international researchers and physicians from around the world. The meeting is hosted by the Association for Creatine Deficiencies (ACD). \nThe mission of the ACD is to advocate\, educate\, and promote research for patients and families coping with the effects of a creatine deficiency. Given our mission\, we believe it is imperative to hold open and collaborative scientific meetings and to unite knowledge of creatine deficiencies across the globe. \nEvent Details/Registration\n[/vc_column_text][/vc_column][/vc_row]
URL:https://creatineinfo.org/event/2021-ccds-virtual-conference-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210821
DTEND;VALUE=DATE:20210822
DTSTAMP:20260430T094808
CREATED:20210413T123918Z
LAST-MODIFIED:20220518T164428Z
UID:18732-1629504000-1629590399@creatineinfo.org
SUMMARY:Walk for Strength 2021
DESCRIPTION:Join us on Saturday\, August 21st\, 2021 for the ACD’s sixth annual Walk for Strength!\nClick here to register!
URL:https://creatineinfo.org/event/wfs-2021/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20210714T080000
DTEND;TZID=America/Denver:20210722T170000
DTSTAMP:20260430T094808
CREATED:20210614T113521Z
LAST-MODIFIED:20210614T113521Z
UID:19123-1626249600-1626973200@creatineinfo.org
SUMMARY:Rare Disease Week
DESCRIPTION:Rare Disease Week is July 14-22. EveryLife Foundation invites you to attend virtually on Capitol Hill this year. By attending and participating in different events\, you will have the opportunity to meet and network with rare disease advocates from across the country and your own state\, share your rare disease story and meet with your Members of Congress and/or their staff\, and earn points for participating in Rare Disease Week. The top 50 point-earners from the week will win a grant from $1\,000 to $5\,000 each for their rare disease organization of choice\, totaling $100\,000 awarded by the EveryLife Foundation. \nTo see a detailed agenda and to register\, click here.
URL:https://creatineinfo.org/event/rare-disease-week/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20210609T130000
DTEND;TZID=America/Denver:20210609T140000
DTSTAMP:20260430T094808
CREATED:20210608T140556Z
LAST-MODIFIED:20210608T184700Z
UID:19107-1623243600-1623247200@creatineinfo.org
SUMMARY:ACD ClinGen Webinar: How to Read Your Genetic Report
DESCRIPTION:Have you wondered about your child’s specific mutation of creatine deficiencies? Do you want to know what missense mutations are? \nJoin ACD and ClinGen on June 9th at 12 pm PT for a webinar for parents and caregivers to learn about:\n– How to read your genetic testing report\n– How to participate in the ClinGen Data Sharing Program\n– Your questions answered on a Live Q&A Session \nSpeakers: Juliann Savatt\, Clinical and Research Genetic Counselor at Geisinger\, Sofia Balog\, Patient Registry Coordinator at Association for Creatine Deficiencies. Moderator: Erin Coller\, Director of Communications for Creatine Deficiencies \nRegister Here
URL:https://creatineinfo.org/event/acd-clingen-webinar-how-to-read-your-genetic-report/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20210604T120000
DTEND;TZID=America/Los_Angeles:20210604T130000
DTSTAMP:20260430T094808
CREATED:20210520T201528Z
LAST-MODIFIED:20210520T201528Z
UID:18979-1622808000-1622811600@creatineinfo.org
SUMMARY:ACD - ClinGen Webinar
DESCRIPTION:“How to read your genetic test report & ClinGen Data Sharing Program”\nSpeakers: Juliann Savatt\, Clinical and Research Genetic Counselor at Geisinger\, Laura Trutoiu\, Ph.D.\, Director of Research at Association for Creatine Deficiencies\, Sofia Balog\, Patient Registry Coordinator at Association for Creatine Deficiencies. \nHave you wondered about your child’s specific mutation of creatine deficiencies? Do you want to know what missense mutations are? Join ACD and ClinGen to learn about: \n\nHow to read your genetic testing report\n\n\nHow to participate in the ClinGen Data Sharing Program (CreatineInfo Registry)\n\nPart 1: \nHow to read your genetic test report \n\nIntroduction to chromosomes\, DNA\, and genes\nTypes of genetic changes (variants) –  missense\, frameshift\, nonsense\nTypes of genetic testing\nOther common terms on testing reports – autosomal dominant\, autosomal recessive\, de novo\, inherited\, mosaic\nExamples of how to read your genetic testing report\nQ&A\n\nPart 2:\nClinGen Data Sharing Program Opt-in \n\nBenefits of enrolling in data sharing as outlined in the CreatineInfo Registry consent form\nHow to enroll in the program\, if interested (Step by step)\nSharing your genetic report with ACD and with ClinGen \nQ&A
URL:https://creatineinfo.org/event/acd-clingen-webinar/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210315
DTEND;VALUE=DATE:20210316
DTSTAMP:20260430T094808
CREATED:20210105T202506Z
LAST-MODIFIED:20210312T141458Z
UID:18437-1615766400-1615852799@creatineinfo.org
SUMMARY:CreatineInfo Registry Launch
DESCRIPTION:The ACD\, in partnership with NORD\, is launching a Natural History Study Patient-reported Registry on March 15th. Join the registry and help us further research for a better quality of life for those impacted by Creatine Deficiencies. Join at creatineinfo.iamrare.org.
URL:https://creatineinfo.org/event/creatineinfo-registry-launch/
CATEGORIES:Community Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20210228T080000
DTEND;TZID=America/Denver:20210228T233000
DTSTAMP:20260430T094808
CREATED:20210105T202256Z
LAST-MODIFIED:20210224T013623Z
UID:18434-1614499200-1614555000@creatineinfo.org
SUMMARY:Rare Disease Day 2021
DESCRIPTION:February 28th is Rare Diseases Day. This year\, we will raise awareness AND empower research!  Stay tuned for the launch of our CreatineInfo Registry. Together we will search for answers and help move research forward. \nTo learn more\, contact registry@creatineinfo.org or sign up for updates here: https://bit.ly/ACDpatientregistry.
URL:https://creatineinfo.org/event/rare-disease-day-2021/
CATEGORIES:Community Events
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210201
DTEND;VALUE=DATE:20210202
DTSTAMP:20260430T094808
CREATED:20200906T035007Z
LAST-MODIFIED:20210105T202002Z
UID:17748-1612137600-1612223999@creatineinfo.org
SUMMARY:CCDS Day 2021
DESCRIPTION:  \nCCDS Day 2021 is February 1st. How has CCDS changed your story? If you’d like to participate in our #CCDSDay2021 Campaign\, send us a picture of your child/family and a quote answering this question. Email faith@creatineinfo.org.  \nPlease also sign and complete this release form\, giving us permission to share your picture and quote.
URL:https://creatineinfo.org/event/ccds-day-2021/
CATEGORIES:Community Events
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201101
DTEND;VALUE=DATE:20210101
DTSTAMP:20260430T094808
CREATED:20200906T032144Z
LAST-MODIFIED:20201103T015207Z
UID:17743-1604188800-1609459199@creatineinfo.org
SUMMARY:Holiday Heroes Fundraiser
DESCRIPTION:Holiday Heroes is our annual fundraiser and this year we will be fundraising to support the continuation of Gene Therapy Advancement Awards in 2021 as well as drug development research. Visit our Holiday Heroes page to learn more and donate now! \nLearn more about the initiatives funded by the 2020 Holiday Heroes at ACD’s research strategy page and the Gene Therapy Consortium page.
URL:https://creatineinfo.org/event/hhf/
CATEGORIES:Community Events
END:VEVENT
END:VCALENDAR