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DTSTART;VALUE=DATE:20150924
DTEND;VALUE=DATE:20150926
DTSTAMP:20260430T165349
CREATED:20180124T051652Z
LAST-MODIFIED:20180124T051652Z
UID:4571-1443052800-1443225599@creatineinfo.org
SUMMARY:Attendance at Global Genes Rare Patient Advocacy Summit
DESCRIPTION:Attendance at Global Genes Rare Patient Advocacy Summit\n \nGlobal Genes Summit\nHuntington Beach\, California\nSeptember 24 – 25\, 2015 \n 
URL:https://creatineinfo.org/event/attendance-at-global-genes-rare-patient-advocacy-summit-2/
CATEGORIES:Exhibits & Workshops
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20150324
DTEND;VALUE=DATE:20150329
DTSTAMP:20260430T165349
CREATED:20180124T051726Z
LAST-MODIFIED:20180124T051726Z
UID:4573-1427155200-1427587199@creatineinfo.org
SUMMARY:Exhibit at The 2015 ACMG Conference
DESCRIPTION:Exhibit at The 2015 ACMG Conference\n2015 ACMG Conference\nSalt Lake City\, Utah\nMarch 24 – 28\, 2015
URL:https://creatineinfo.org/event/exhibit-at-the-2015-acmg-conference/
CATEGORIES:Exhibits & Workshops
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150227
DTEND;VALUE=DATE:20150228
DTSTAMP:20260430T165349
CREATED:20180124T051808Z
LAST-MODIFIED:20180124T051808Z
UID:4575-1424995200-1425081599@creatineinfo.org
SUMMARY:The Pediatric Grand Rounds Rare Disease Day Event
DESCRIPTION:The Pediatric Grand Rounds Rare Disease Day Event\nFebruary 27\, 2015\nKim Tuminello\, ACD President Presented
URL:https://creatineinfo.org/event/the-pediatric-grand-rounds-rare-disease-day-event/
CATEGORIES:Exhibits & Workshops
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20141022
DTEND;VALUE=DATE:20141026
DTSTAMP:20260430T165349
CREATED:20180124T051906Z
LAST-MODIFIED:20180124T051906Z
UID:4577-1413936000-1414281599@creatineinfo.org
SUMMARY:Exhibit at the 43rd Child Neurology Society (CNS) Meeting
DESCRIPTION:Exhibit at the 43rd Child Neurology Society (CNS) Meeting\nColumbus\, Ohio\nOctober 22 – 25\, 2014 \nThe ACD was thrilled to exhibit at the Child Neurology Society 2014 Meeting. All five ACD Board Members were in attendance. \nThe CNS Scientific Meeting is designed by\, and is primarily intended for\, child neurologists and professionals in fields of study related to neurologic and developmental disorders in children and adolescents. As a result of attending this meeting\, the physicians will be better able to care for children with neurological disease through an understanding of recent advances in neuroscience\, neurodiagnostics and therapeutics relevant to child neurology. \nThe ACD Exhibit booth was very busy with attendees. We were able to educate and advocate for CCDS screening. All attendees that stopped by the booth had an interest in CCDS screening and lab information. We are in hopes that we can make this meeting annually. \nMelissa Parker\, Missy Klor\, Linda Cooper\, Whitnie Strauss\, and Kim Tuminello
URL:https://creatineinfo.org/event/exhibit-at-the-43rd-child-neurology-society-cns-meeting/
CATEGORIES:Exhibits & Workshops
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20140901
DTEND;VALUE=DATE:20140902
DTSTAMP:20260430T165349
CREATED:20180124T051948Z
LAST-MODIFIED:20180124T051948Z
UID:4579-1409529600-1409615999@creatineinfo.org
SUMMARY:Attendance at the Global Genes Rare Patient Advocacy 2014 Summit
DESCRIPTION:Attendance at the Global Genes Rare Patient Advocacy 2014 Summit\nHuntington Beach\, California\nSeptember 2014 \nThe ACD attended the 2014 Global Genes Allies and Rare Disease Advocacy Summit\, in Huntington Beach\, California. At this year’s event\, the ACD left with helpful information and new contacts. We attended workshops to learn more about Patient Registries\, Grant Writing\, and Fundraising. This was Global Gene’s 3rd Annual Summit and was host to over 350 attendees and over 1\,000 participated via webcam. To see more\, go to www.globalgenes.org.
URL:https://creatineinfo.org/event/attendance-at-the-global-genes-rare-patient-advocacy-2014-summit/
CATEGORIES:Exhibits & Workshops
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20130612
DTEND;VALUE=DATE:20130616
DTSTAMP:20260430T165349
CREATED:20180124T052041Z
LAST-MODIFIED:20180124T052041Z
UID:4581-1370995200-1371340799@creatineinfo.org
SUMMARY:Exhibit at the UMDF Mitochondrial Medicine 2013 Symposium
DESCRIPTION:Exhibit at the UMDF Mitochondrial Medicine 2013 Symposium\nNewport Beach\, California\nJune 12 – 15\, 2013 \nThe ACD was thrilled to exhibit at the UMDF Mitochondrial Medicine 2013 Symposium that was held in Newport Beach\, California. \nThis symposium encourages the exchange of information and cultivates networking among physicians\, researchers\, patients and families for mitochondrial diseases. Linda Cooper and Kim Tuminello were in attendance for the ACD and met many wonderful people! They had a very active booth and were able to connect with professionals that gave them guidance related to patient advocacy groups. The most frequently shared advice to the ACD was to increase our patient registry! This is a must in accomplishing our goals. \nWe take this information to heart and will actively work on connecting with other organizations\, the medical community at large\, lab facilities\, patients\, and families to improve our patient registry. The ACD will continue to exhibit at future conferences that connect with Cerebral Creatine Deficiency Syndromes. \nLook who else was at the UMDF Symposium.
URL:https://creatineinfo.org/event/exhibit-at-the-umdf-mitochondrial-medicine-2013-symposium/
CATEGORIES:Exhibits & Workshops
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