Holiday Heroes Researcher Messages of Hope

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Share Hope this Year! Complete the form below.

Help us build excitement in our patient community during the 2024 Holiday Heroes campaign by completing the form below.

Step 1- Pick a few photos of yourself and/or your research team.

Step 2- Consider recording a video message of hope.

Step 3- Write a thoughtful sentence to each of our prompts.

With your help, we can tell families that they are not alone; that you are working hard to find ways to improve their child’s future. Thank you!

Deadline for submissions:

November 15, preferably earlier

Submission Form

Drop files here or
Max. file size: 256 MB.
    Please upload 1-3 photos of you and/or your research team.
    Drop files here or
    Max. file size: 256 MB.
      You may upload one video clip message of encouragement and hope to the CCDS community of 90 seconds or less.

      Quotes

      Please provide at least one quote.
      (e.g., "We hope to find an alternate transporter that can do the job of slc6a8!")
      What is the impact your work may have? (e.g., "I believe patients with CTD will show cognitive improvements when we can get creatine to the brain, regardless of their age")
      If you have a personal connection, we'd love to share it. (e.g., "I had a patient with CTD and they inspired me to solve this disorder", "I met a family with a child with GAMT and I knew I wanted to help", etc.)
      Consent(Required)