About Matthew
Matthew is turning 18 this December. Hard to believe how quickly the years fly by. Nine years ago we received Matthew’s creatine transporter deficiency (CTD) diagnosis. It seems like yesterday. Upon turning 18, we won’t be sending him off to college like so many other families. We will instead become Matthew’s conservators, essentially taking over his rights of personhood.
If you can find it in your hearts and wallets to make a donation this holiday season, please consider donating to the Association for Creatine Deficiencies (ACD) to help Matthew and all the children and families affected by a rare creatine disorders. ACD directly funds the brilliant researchers and scientists working on new drug discoveries, repurposed drugs, and therapies. They also have been our rock through our CTD journey.
Thank you for being our holiday hero.
Holiday Heroes 2024
Holiday Heroes is ACD’s year-end fundraiser and all funds raised are dedicated to research.
ACD has been promised a donation of $125,000 when $200,000 has been raised. This is will be ACD’s largest ever single donation and will be monumental for next year’s CCDS research! Your help will go farther this year than ever before!
Children with Creatine Deficiencies are severely impacted in their daily lives by:
- Seizures
- Lack of Speech
- Intellectual Disability
- Autism
- Behavioral Issues
- And more…
Your donation will fund research to change this!
ACD has some very promising research initiatives underway. Additional funding will expand these efforts and launch new projects, such as:
- The next phases of promising research projects (2 large projects began in 2024)
- New fellowship grants to early career researchers (5 were awarded in 2024)
- Creatine Deficiency Research Centers (multi-project CCDS research institutions; University of Utah was launched in 2023)
- New projects with a focus on therapeutic development (proposals under review)
Thank you for being a Holiday Hero!
We can’t do this without you. Please donate today to fund CCDS research.
Questions? Contact ACD.