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Parents 2.0 Application
Home
Parents 2.0 Application
PaReNts 2.0 Application
First Name
(Required)
Last Name
(Required)
Email Address
(Required)
Preferred Language
(Required)
Note: For preferences other than English, accommodations may include recorded meetings with translated captioning and support of a translator to answer questions after viewing the recording.
I am the caregiver of a patient with a CCDS
(Required)
Yes
No
Which CCDS will you be representing?
(Required)
Creatine Transporter Deficiency (CTD)
GAMT Deficiency
I have viewed the PAReNts 2.0 webinar.
(Required)
Yes
No
Which of the following Core Outcomes are important to the patient you care for?
(Required)
Adaptive Functioning
Cognitive Functioning
Emotional Dysregulation
Expressive Communication
Fine Motor Functions
Seizure/Convulsions
Please select your desired role in this project:
(Required)
New PAReNts participant
Returning participant & mentor in this project
Mentor Applicant Statement
(Required)
If you are applying for a mentor role, please tell us in 3-5 sentences why you are interested, how you feel you can contribute to this project, and what excites you about this work.
PaReNts Project Agreement
(Required)
I agree to the following:
I understand that if my application is accepted I will be required to attend and actively participate in monthly 90-minute Zoom meetings (October 2024-June 2026). For non-English speakers, this will mean watching the recorded meetings with translated captioning. Each meeting will be offered at two different times to accommodate attending at the time that is best for you. Attendance of 75% or greater of the meetings is required for any potential stipends or support.
