Research Slack

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CCDS Research Slack Workspace

This private Slack workspace is for Cerebral Creatine Deficiency Syndrome (CCDS) Researchers. The purpose of this workspace is to connect researchers to share successes and failures, seek or offer advice and support, and ultimately accelerate CCDS research. We will contact you with any questions and a link to join the space if approved.

 

Please adhere to the following guidelines to ensure a respectful and secure research environment:

1. Respect and Etiquette: Acknowledge the contributions of collaborators and avoid sharing any information marked as confidential.

2. Privacy: Do not disclose any patient-identifying information.

3. Workspace Conduct and Reporting: ACD reserves the right to remove members from the workspace for any reason. To report any concerns or issues, email research@creatineinfo.org.

4. Confidentiality: ACD cannot guarantee confidentiality, so please be cautious about what you share.

5. Channel Access:

  • Channels marked with a # are visible to all members.
  • Channels with a lock icon are private and only accessible to their members.

6. Direct Messages: ACD and other members cannot access direct messages or private channels unless explicitly included.

Thank you for your cooperation and contributions to the CCDS research community!

Slack Access Request Form

Name(Required)
Select all Disorders of Interest(Required)
Do you care for CCDS Patients?(Required)
Are you currently researching one or more CCDS?(Required)
Do you consent to the community rules below?(Required)
I acknowledge that I will adhere to the following guidelines to ensure a respectful and secure research environment. Respect and Etiquette: Acknowledge the contributions of collaborators and avoid sharing any information marked as confidential. Privacy: Do not disclose any patient-identifying information. Workspace Conduct and Reporting: ACD reserves the right to remove members from the workspace for any reason. To report any concerns or issues, email research@creatineinfo.org. Confidentiality: ACD cannot guarantee confidentiality, so please be cautious about what you share. Channel Access: Channels marked with a # are visible to all members. Channels with a lock icon are private and only accessible to their members. Direct Messages: ACD and other members cannot access direct messages or private channels unless explicitly included. Thank you for your cooperation and contributions to the CCDS research community!
This field is for validation purposes and should be left unchanged.