CCDS Symposium Registration


CCDS Scientific + Patient Symposium Registration

This conference is intended for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT, CTD, and AGAT disorders, allowing for a deeper understanding of CCDS in the medical community and helping pave the way for innovation through collaboration.

Thursday, July 26, 2018

Symposium check in and Badge Pick Ups 6:30pm – 7:00pm | Westin 3rd floor

Friday, July 27, 2018

CCDS presentations from 8:45am – 4:45pm

Saturday, July 28, 2018

CCDS presentations from 8:45am – 4:45pm

Sunday, July 29, 2018

Family Time from 10:00am – 12:00pm | Westin Poolside Garden

Click here to preview the tentative schedule.



Physicians, Researchers, and Professionals

The registration fee for Professionals is $200 per person and includes attendance at all meetings and meals- Breakfast Friday through Dinner Saturday. You may register for a room at the Westin at the conference rate of $189 per night while supplies last by visiting: CCDS Westin Registration


CCDS Families and Patients

The cost for Patients and Families to attend the conference is $50. All meals will be provided Breakfast Friday through Brunch Sunday. Simply fill out the Registrant Information below. There is a fee for the Kids’ Camp and the hotel room. Please register for your hotel room, using your access code*, by February 28, 2018, to get the reduced family rate at CCDS Westin Registration.

Families and Professionals, please submit this form to complete your registration.

Registrant Information

Please list all family members that will be attending.