“Spiro and I” – Janet My Creatine Transporter Deficiency journey began September 5th, 2009 with the birth of my son Spiro. Although I didn’t know it at the time, our […]
“Run” – Nathan Greetings again friends! While I had a post all written about expectations for this week, I just felt like this topic weighed heavier on my heart, so […]
“The Seizure Battle” – Heidi When Samantha was five, she began having absence seizures. The quick, least scary type of seizures (still scary) where she would seem to look up […]
“The One in the Middle” – Beth With the GAMT diagnosis of two of our children, our unaffected middle child immediately became the odd man out. Even my husband and I, […]
“Raising Reid” – Whitnie They say it takes a village to raise a child. I believe that to be true. If left up to me alone, I’m not sure I’d survive […]
“This Too Shall Pass” – Nathan Hello again friends, thanks for taking the time to once again visit with our interesting family adventures. The past several weeks have been good […]
I’m Sarah and my daughter Ella is now 6 and a half. She was diagnosed with GAMT at just over 3 years old (February 2013). Before diagnosis Ella was initially […]
“Sweet William” – Jessica Hi, my name is Jessica and my son William, who just turned 5, has Creatine Transporter Deficiency (CTD). William was born in April 2011 and as first […]
“Out of the Dark” – Beth When it comes to high points in my life, I have many—my wedding day, each of the births of my three children. It’s difficult […]
RUSP Presentation – Heidi Hi. My name is Heidi Wallis. I am the mother of four children- two with GAMT and two without. There are a few things I want […]