Attendance at Global Genes Rare Patient Advocacy Summit
Attendance at Global Genes Rare Patient Advocacy Summit Global Genes Summit Huntington Beach, California September 24 – 25, 2015
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Exhibit at The 44th Annual Child Neurology Society (CNS) Meeting
Exhibit at The 44th Annual Child Neurology Society (CNS) Meeting CNS Annual Meeting Gaylord National (Outside of Washington, DC) October 7 – 10, 2015
Walk Now For Autism Speaks
Walk Now For Autism Speaks Angel Stadium Anaheim, California December 6, 2015
Exhibit at the “U.R. Our Hope” Rare Disease Day “Cup of Hope” Chili Cook-Off
Exhibit at the "U.R. Our Hope" Rare Disease Day "Cup of Hope" Chili Cook-Off Kyle, Texas February 20, 2016 The ACD attended the "U.R. Our Hope" chili cook-off in Kyle, Texas. It was a great event and raised more awareness of cerebral creatine deficiencies in the community. We even saw some folks from Lumos there. […]
Exhibit at the 2016 Annual Clinical Genetics (ACMG) Meeting
Exhibit at the 2016 Annual Clinical Genetics (ACMG) Meeting Tampa, Florida March 8 – 12, 2016 Whitnie Strauss, Kim Tuminello, and Laura Martin from ACD along with Jodi Keene, all attended the American College of Medical Genetics and Genomics (ACMG) Annual Clinical Genetics Meeting 2016 at the Tampa Convention Center, Tampa, Florida. The targeted audience for this medical […]
Exhibit at Autism Speaks Walk: Los Angeles
Exhibit at Autism Speaks Walk: Los Angeles Pasadena, California April 2, 2016 Thousands attended the Walk Now for Autism Speaks event at the Rose Bowl in Pasadena, California. Opening ceremonies for the 14th annual 5K event kicked off at 9 a.m. The walk benefited autism research and programs to raise awareness. With a very high […]
(NINDS) National Institute of Neurological Disorders and Stroke Nonprofit Forum
(NINDS) National Institute of Neurological Disorders and Stroke Nonprofit Forum Bethesda, Maryland September 13 – 14, 2016
Exhibit at the Society for Developmental and Behavioral Pediatrics (SDBP)
Exhibit at the Society for Developmental and Behavioral Pediatrics (SDBP) Savannah, Georgia September 17 – 19, 2016 Tony Parker and Melissa Parker
Attendance at Global Genes Rare Patient Advocacy Summit
Attendance at Global Genes Rare Patient Advocacy Summit Huntington Beach, CA September 22 – 24, 2016 Global Genes is the leading rare disease advocacy organization with global reach to the worldwide community of rare disease patients, caregivers, advocates, and clinical partners. This conference was the 3rd year that the ACD had attended in Huntington Beach, […]
Attendance at National Organization for Rare Diseases (NORD)
Attendance at National Organization for Rare Diseases (NORD) Washington, DC October 17-18, 2016