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Welcome to the Association for Creatine Deficiencies (ACD), an organization dedicated to the three Cerebral Creatine Deficiency Syndromes:
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The Association for Creatine Deficiencies is committed to providing patient, family, and public education to advocate for early intervention through newborn screening, and to promote and fund medical research for treatments and cures for Cerebral Creatine Deficiency Syndromes.

What is CCDS?

Creatine helps supply energy to all cells in the body. It helps increase adenosine triphosphate (ATP).

Creatine is produced in the liver, which makes it out of three amino acids: arginine, glycine and methionine. Most of our body's creatine (approximately 95%) is stored in the muscles that support the skeleton.

Cerebral Creatine Deficiency Syndromes are a group of inborn errors of creatine metabolism. In an individual, symptoms can include, but are not limited to: intellectual delays, expressive speech and language delay, autistic-like behavior, hyperactivity, seizures, and movement disorders.

Creatine Community Blog

24May 2017

Ben smiling, wearing a preppy sweater

Not having a diagnosis for your child when you know something is wrong is like driving your car somewhere you’ve never been before with no directions. All you know is the general direction, and you keep moving that way, but you’re really not sure you’ll make your destination because you don’t know how to get there. Continue reading

09May 2017

boys hunting for easter eggs on lawn

Greetings friends! Well, it is that time again as I am once more honored to be a part of your daily intake of reading. Although I often share the awesome craziness of our lives and how our three boys with CTD have gone through some tough spells, everything is on the right track now and this post will be a bit different. Continue reading