Register for the CCDS Symposium July 27-28 & support Ride for Ben.
Creatine helps supply energy to all cells in the body. It helps increase adenosine triphosphate (ATP).
Creatine is produced in the liver, which makes it out of three amino acids: arginine, glycine and methionine. Most of our body's creatine (approximately 95%) is stored in the muscles that support the skeleton.
Cerebral Creatine Deficiency Syndromes are a group of inborn errors of creatine metabolism. In an individual, symptoms can include, but are not limited to: intellectual delays, expressive speech and language delay, autistic-like behavior, hyperactivity, seizures, and movement disorders.
As a mom of a child with a rare condition, particularly of my Ben who has Creatine Transporter Deficiency (CTD), it’s so easy to let your mind wander into topics that make you really sad or scared. That’s been happening to me recently. Continue reading
I feel like all us parents of special need kiddos have that one person who is our main go-to. Who we all wonder why the heck they choose to be involved in our lives but are so extremely happy they stay. This post is going to be a little different because I’m pretty much just going to shout out to our friend. But I feel like you guys will relate because I know you guys have this Friend in your life too… Continue reading
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