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Welcome to the Association for Creatine Deficiencies (ACD), a nonprofit organization dedicated to the three Cerebral Creatine Deficiency Syndromes:
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Attend the Virtual Conference 2020.

The Association for Creatine Deficiencies’ mission is to provide patient, family, and public education, to advocate for early diagnoses, and to promote and fund medical research for treatments and cures for Cerebral Creatine Deficiency Syndromes (CCDS).

What is CCDS?

Cerebral Creatine Deficiency Syndromes (CCDS) are a group of inborn errors of creatine metabolism including AGAT, CTD, and GAMT. Symptoms may include: intellectual delays, expressive speech and language delay, autistic-like behavior, hyperactivity, seizures, projectile vomiting in infancy, failure to thrive, and movement disorders.

Creatine helps supply energy to all cells in the body. It helps increase adenosine triphosphate (ATP).

Creatine is produced in the liver, which makes it out of three amino acids: arginine, glycine and methionine. Most of our body's creatine (approximately 95%) is stored in the muscles that support the skeleton.

Creatine Community Blog

11Aug 2020

“Science Explained: Behavior Support and the First ACD Webinar for Parents” -Celeste

Education is one of the key parts of our mission here at the ACD. This “Science Explained” blog post gives a brief overview of a topic near and dear to many of us as CCDS parents: what science and psychological theory say about what therapies work for our kiddos related to their behaviors. The ACD recently held a webinar focused on supporting parents in the CCDS community in regards to challenging behaviors.  I’m not sure about you, but we have seen an increase in behaviors the past few months in our house!

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Upcoming Events

AUG2
Walk for Strength
AUG7-8
Virtual Conference 2020
AUG2
Community Social Hour & Keynote Speaker
Jun26-29
CCDS Scientific + Patient Symposium 2021
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