ACD is launching a “Community Chat” series of meetings in which we will discuss a topic with the community, have ‘Ask Me Anything’ meetings with researchers, and more! Our first meeting will be with Dr. Steven Baker to learn about the progress his team has made in year 1 of the Creatine Deficiency Research Center […]
Holiday Heroes ACD's most important fundraising event of the year! Our goal is to raise $350,000 for our exciting 2024 research initiatives. Be a part of this community effort and help change lives for those living with CTD, AGAT, and GAMT! The Holiday Heroes campaign runs from November 28 to December 31, 2023 Click here […]
ACD is pleased to announce a call for applications for research fellowships towards advancing knowledge of Cerebral Creatine Deficiency Syndromes. All topics will be considered but preference will be given to proposals that facilitate progress to the clinic, e.g. method/assay development for biomarkers, model/reagent development, drug screening, etc. The deadline to apply is November 30, 2023. Fellowship awards carry a letter of […]
Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register here.
CCDS Day happens annually on February 1 when we unite our efforts as a community to raise awareness of Cerebral Creatine Deficiency Syndromes! This year, join us as we launch our collaboration with Drs. Laura Baroncelli, Michela Fagiolini, and Irina Anselm at Boston Children's Hospital to investigate fNIRS as a functional biomarker in GAMT and […]
Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register here.
Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of a community that is committed to building strength and changing lives! Click here to learn more about the Walk For Strength. Subscribe to receive updates […]
The 2024 CCDS Scientific + Patient Symposium will be held at the Little America Hotel in Salt Lake City, Utah. Talks will be presented all day June 29 & 30. We recommend arriving June 28 or earlier and departing July 1 or later. We strongly suggest that you reserve your hotel room(s) as soon as possible. All rooms, […]
Champions for a Cure Gala Fundraiser & Silent Auction Benefitting ACD’s Patient Strong Fund Reserve your ticket Sponsor the gala Online Auction June 30, 2024 • 6:00 – 10:00 PM Little America Hotel, 500 Main St, Salt Lake City, UT Join us for dinner & dancing • All attire welcome! Attendees will be from our […]
Are you interested in participating in PAReNts 2.0 or learning more about the exciting plans for this project? We are hosting a Zoom Webinar on September 6, 2024 at 3 pm Eastern Time to learn more. *We will have 20 spots for caregivers to join this new project and 3 spots for PAReNts 1.0 participants […]
