Past Events from April 18, 2024 – April 18, 2024 – Association for Creatine Deficiencies

Sibshops 7/8

Learn more and register here.

GAMT Webinar

2023 CCDS Virtual Conference – Caregiver Session

The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling experience, sleep training for CCDS patients, and identifying and managing CCDS behavior challenges. Visit the conference page and register today by clicking here!

2023 CCDS Virtual Conference – Main Sessions

Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and advancements. Visit the conference page and register today by clicking here!

Community Chat Series: Dr. Steve Baker

Zoom Webinar

ACD is launching a “Community Chat” series of meetings in which we will discuss a topic with the community, have ‘Ask Me Anything’ meetings with researchers, and more! Our first meeting will be with Dr. Steven Baker to learn about the progress his team has made in year 1 of the Creatine Deficiency Research Center […]

Holiday Heroes 2023

Holiday Heroes ACD's most important fundraising event of the year! Our goal is to raise $350,000 for our exciting 2024 research initiatives. Be a part of this community effort and help change lives for those living with CTD, AGAT, and GAMT! The Holiday Heroes campaign runs from November 28 to December 31, 2023 Click here […]

ACD Fellowship Applications Due

ACD is pleased to announce a call for applications for research fellowships towards advancing knowledge of Cerebral Creatine Deficiency Syndromes. All topics will be considered but preference will be given to proposals that facilitate progress to the clinic, e.g. method/assay development for biomarkers, model/reagent development, drug screening, etc. The deadline to apply is November 30, 2023. Fellowship awards carry a letter of […]

Sibshops 1/27/2024

Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register here.

CCDS Day 2024

CCDS Day happens annually on February 1 when we unite our efforts as a community to raise awareness of Cerebral Creatine Deficiency Syndromes! This year, join us as we launch our collaboration with Drs. Laura Baroncelli, Michela Fagiolini, and Irina Anselm at Boston Children's Hospital to investigate fNIRS as a functional biomarker in GAMT and […]