Walk for Strength

Join the Global ACD Walk for Strength!

The annual Walk for Strength is an event that unites people around the world in raising awareness for Cerebral Creatine Deficiency Syndromes (CCDS).

There are many ways to participate in the Walk For Strength each June! Find a team in your area and walk in your local community, participate as a solo walker anywhere in the world, or make a donation to support a specific WFS team or the general event.

Walk for Strength is the flagship community event of ACD.

Walk for Strength unites families, researchers, clinicians, and supporters around the world to raise awareness and fund research for Cerebral Creatine Deficiency Syndromes (CCDS). Whether you walk locally, virtually, or in honor of a loved one, your participation helps move research forward and brings us closer to treatments and cures.

Why Walk for Strength Matters

Walk for Strength is more than a community event, it is a global signal to the scientific and medical community that families affected by creatine deficiencies are organized, committed, and determined to accelerate progress. Funds raised through Walk for Strength help:

Advance gene therapy research for creatine transporter deficiency
Support drug development and treatment discovery
Fund research fellowships and clinical readiness initiatives
Expand awareness of CTD, GAMT, and AGAT disorders
Strengthen the international CCDS patient community

Every walker, donor, and team helps build momentum toward clinical trials and better outcomes for families.

Walk for Strength 2026

Join us for the 11th annual Walk for Strength event on July 25, 2026!

Participate Your Way

One of the strengths of this event is its flexibility. You can join in the way that works best for you:

Join a Team

Walk with a local group or support a loved one by joining their fundraising team. Team captains provide details about meeting locations, schedules, and community activities.

Walk Solo

Prefer to participate on your own schedule? Register as a solo walker and join the global CCDS community from anywhere.

Walk Virtually

Families across the world take part each year. Walk in your neighborhood, local park, or favorite trail and share your participation online to spread awareness.

Donate

If you can’t participate in person, you can still make an impact by donating to the Walk for Strength campaign or supporting a specific team.

A Global Community Event

Each year, Walk for Strength brings together participants from multiple countries in a shared effort to raise awareness and fund life-changing research. This event demonstrates the power of patient-driven advocacy and the collective determination to move treatments forward faster. When you walk, you are part of a global movement working toward:

Earlier diagnosis through newborn screening
Access to effective therapies
A cure for creatine deficiencies

Past Walk for Strength Events

Walk for Strength 2025

2025 - 10th Annual Walk for Strength

$160,781 Raised

1,236 Walkers

996 Donors

10 Countries

The Lin Family
Ed and Faye Larson
The Cafferty Family
Team Brendan
Moose Pharmacy of Locust
All Things Common Lawn Care
Glenda Reuter

Big Sky Oral & Facial Surgery
Nicola Longo & Marzia Pasquali
The Schreiner Family
King & Co. Real Estate Group
Poeschel Accounting
Alliance Bank
Jackie and Joel Miller-Oates