Do you have questions about the recent changes announced by Ultragenyx to the Vigilan Natural History Study? ACD is hosting a virtual town hall event on Friday, Oct. 14, from 12 noon – 1:30pm PT with Ultragenyx representatives and Dr. Judi Miller, the Coordinating Principal Investigator for the Vigilan study, to answer your questions. You...

Join us on Saturday, August 20th, 2022 for the ACD's 7th annual Walk for Strength! Visit our Walk for Strength 2022 page to learn more, set up your team and register!

This conference is intended for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT, CTD, and AGAT disorders, allowing for a deeper understanding of CCDS in the medical...