Rare Disease Day Wednesday, February 28, 2018 CCDS are considered rare disorders and the ACD is proud to support Rare Disease Day. Help us join with other rare disease groups in spreading Rare Disease and CCDS Awareness on February 28, 2018. Rare Disease Day is a worldwide initiative. For more information on this international event, […]
Walk For Strength June 9, 2018 Registration is now open for the third annual Walk for Strength. This walk is meant to be participated in by all CCDS families in their local communities. Your group may be as small as 1 or as large as you can recruit! Email us for more ideas and flyers […]
The first-ever in-person CCDS Symposium was held in Austin, Texas with patients, clinicians, and researchers attending July 26 through July 29. Learn more here. Find the recordings of talks here.
For more information, and to register for this event, please visit creatineinfo.org/simd.
Dr Gajja Salomons, Xtraordinaire, and ACD have the pleasure to host the 2019 Symposium on Cerebral Creatine Deficiency Syndromes “CCDS” in Rotterdam on Friday, September 6 and Saturday, September 7.
This symposium offers a unique opportunity for...
Swing Fore CCDS A Charity Golf Tournament Benefitting The Association for Creatine Deficiencies' PatientStrong™
Sunday, August 2nd, 2020 This year we're walking as one big team! This year, while respecting local health guidance, CCDS families, friends, researchers, and supporters worldwide will be walking in support of those affected by GAMT, AGAT, and CTD. Hold your family's walk when and where it suits you and join us afterward at the Community Social Hour. #socialdistance […]
Keynote: Lessons Learned From 2 Years of the Vigilan Natural History Study Dr. Judith Miller, Ph.D., Children's Hospital of Pennsylvania Click Here for the Direct Webinar Link Dr. Judith Miller is a clinical psychologist with 25 years’ experience in developmental disorders. She has a joint appointment as Assistant Professor in both the Psychiatry and Pediatrics […]
The Association for Creatine Deficiencies hosted the 2020 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference on August 7th and 8th, as well as a keynote talk on August 2nd. The goal of this meeting was to share the latest CCDS research and to broaden our research network. Talks covered a variety of topics such as […]
