Global Genes was founded to empower patients, build communities, and drive forward momentum for rare diseases globally. ACD attends this summit every fall and we are excited to invite our families to join in this year on this virtual platform.

This event is open to CCDS families interested in learning more about how we can advocate together for our three rare disorders.

• September 10 is an orientation for those who have not attended before.
• September 15-20 includes a variety of free sessions streamed live on Facebook.
• September 21-25 requires registration at a cost of $25.

Check out the schedule and get registered here.