The Association for Creatine Deficiencies would like to invite you to attend the 2020 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference on August 7th and 8th, as well as the keynote talk on August 2nd. The goal of this meeting is to share the latest CCDS research and to broaden our research network. Invited talks will cover a variety of topics such as natural history data, computational analysis of mutations, structural insights, as well as new directions for treatments, including gene therapy. We will also be joined by industry partners who will provide their insights into therapeutic development for rare diseases.
We welcome researchers, scientists, medical professionals, and industry stakeholders. Early career researchers are particularly encouraged to attend, as we will be announcing new funding opportunities. Our parent community is excited to attend the talks, participate in the discussion, and have their voice represented in the ACD updates.
The conference will kick off on August 2nd with a 1-hour keynote talk on “Lessons Learned From 2 Years of the Vigilan Natural History Study.” Talks are scheduled in nine 1-hour sessions, over two days (August 7 and 8). Please see the full schedule and register online at https://creatineinfo.org/event/virtual-conference-2020/. Please send this invitation to your colleagues and collaborators, including students. There is no cost for registering or attending, and we would appreciate your help in broadening our research network.
To support research, we can help with biosamples, survey data, research grants, and other collaboration opportunities. Please reach out to ACD Director of Research, Laura Trutoiu, if you’d like to find out more about the ACD research initiatives or work with us.