Board of Trustees
ACD requires 100% board giving from all current board members. We are proud to share that each of our board members meets or exceeds this expectation through both personal contributions and gifts from their extended families, businesses, and personal networks. All board member positions are volunteer. Board members are not compensated for their board duties.
Dan Coller – Board Chair
Dan has experience from the private sector, managing companies in the building technology industry for nearly 20 years. Working with clients in biotech, pharmaceutical and technology sectors provided knowledge in research grants and clinical trials. Coller also has significant experience with financial control and oversight with heavily regulated contracts with the US Navy, State of California, US Department of Veterans Affairs, and dozens of federal and state programs. Coller obtained his bachelor’s degree from the University of Southern California, and lives in San Diego, California, with his wife Erin Coller, and their children, Cadman and Emma. Cadman was diagnosed with Creatine Transporter Deficiency in 2017.
Jeffrey Randall Allen – Vice Chair & Director of Impact and Donor Relations
Jeff has nearly 20 years of experience as a sales and business development leader in the healthcare industry. From medical devices to medtech, Jeff has always been attracted to sectors that are in need of new technologies to solve old problems. A native of Ohio and graduate from Ohio University, he now lives in Northern California with his wife, Jennifer, and their sons Jack and Lucas. Lucas was diagnosed with Creatine Transporter Deficiency in 2019.
Kim Tuminello – Director of Advocacy & Co-Founder
Kim is a Co-Founder of ACD and serves as the Director of Advocacy. Her passion for these rare diseases comes from both of her own children being diagnosed with GAMT. Kim is a graduate of San Diego State University with a B.A. in Communications and has over 25 years of sales management and recruiting experience. She has taken her passion for helping children with creatine deficiencies to the state and national level, in advocating for Newborn Screening. Kim resides in Carlsbad, California with her husband Grant, and two children, Ty and Paige.
Celeste Graham – Director of Education
Celeste has a background in special education with an undergraduate degree from the University of North Carolina at Charlotte in Child and Family Development and a master’s degree from Western Carolina University in Special Education. Celeste is passionate about education and empowering parents. Celeste, her husband, Phil, and their four children, Gabriel, Blaine, Paisley, and Levi, live in North Carolina. Levi was diagnosed with CTD at 5 years old.
Erin Coller – Director of Communications
MIKELLE LAW – DIRECTOR OF FINANCE & COMPLIANCE
Mikelle has over 20 years of experience in technology sales and currently leads a sales organization for a software company. She received her BA in European Studies with a minor in French from Brigham Young University. She and her husband Leif reside in Idaho with their three children–Max, Mason, and Sadie. Her son Max was diagnosed with GAMT in 2010, and she is passionate about helping patients and families affected by creatine disorders.
seung chun - board member
Seung has nearly 15 years of experience in pharmaceutical drug development, specializing in rare diseases. Her work focuses on initiating clinical trials and engaging regulators to advance drug development plans. She earned her BS in biology from the University of California, San Diego, where she conducted research in a neurodegenerative diseases lab. Seung lives in Los Angeles with her husband, Chris, and their son, Asher, who was diagnosed with CTD at age two in 2022.
Matt henley – board member
Matt has nearly 20 years of business experience, including over a decade in the architecture, engineering and construction industry. He is currently an executive at a 2,000+ person firm focused on solving environmental, water and energy transition challenges through digital, environmental science and engineering solutions. He has worked in public, employee-owned and private-equity backed businesses, which provides him diverse experience in governance and financial oversight.
Matt holds a Bachelor of Arts degree from Washington University in St. Louis and an MBA from The Wharton School of Business at the University of Pennsylvania. Though a native of Philadelphia, PA, Matt currently lives in Rhode Island with his wife Jill, daughter Drew, and son Lucas, who was diagnosed with CTD in 2024 at 4 years old.
Carole Chehowah – board member
In addition to spending almost 25 years working in finance, Carol, the mother of a child with CTD, has been committed for nearly 20 years to supporting families impacted by this syndrome. Primarily by promoting awareness and funding research in France. She also contributes to improving visibility of the syndrome by organizing symposiums and events across France and Europe.
ACD Advisors
JENNY LIN, MD – MEDICAL ADVISOR
Dr. Jenny Lin, a pediatrician for over 20 years, earned her biology degree from UC Berkeley and her medical degree from the University of Rochester before completing her pediatrics residency at Stanford. Inspired by her daughter’s AGAT deficiency diagnosis, she became an advocate for children with rare diseases. She now serves as a medical advisor to the ACD Board, using her expertise and personal experience to support children with creatine deficiencies.
JAMES MANN – EUROPEAN ADVISOR
James has over 15 years of experience in finance and technology, driving innovative solutions for investment banking and fundraising across public and private markets. He has worked with some of the world’s largest financial institutions, advising clients from startups to global corporations. Known for his strategic, customer-focused approach, James excels in leading teams and executing high-impact initiatives. He lives in London with his wife, Annabelle, and their sons, Freddie and Oscar. Inspired by Freddie’s Creatine Transporter Deficiency diagnosis at age 2, James is passionate about CCDS advocacy and research.
Staff & Contractors
HEIDI WALLIS – EXECUTIVE DIRECTOR
Heidi holds a Bachelor of Science in Business Management and previously worked in the Utah Newborn Screening Informatics program. She serves on the Utah Newborn Screening Advisory Committee, ClinGen DAPC Working Group, and ClinGen CCDS Variant Curation Expert Panel. Passionate about early detection and treatment, she envisions universal newborn screening for creatine deficiencies and safe, effective therapies for each disorder. Heidi lives in Salt Lake City with her husband, Trey, and their four children. Her daughter, Samantha, was diagnosed with GAMT deficiency at 5½ years old, while her son, Louis, was diagnosed and treated shortly after birth.
Sangeetha Iyer, PHD – DIRECTOR OF RESEARCH
Dr. Sangeetha Iyer holds a PhD in Molecular Pharmacology from the University of Pittsburgh and completed her postdoctoral research at the University of Texas at Austin. With over a decade of experience in model development and drug screening for human disorders, she has worked extensively in drug discovery across multiple therapeutic modalities, including gene therapy, large molecules, and small molecules. Dr. Iyer brings deep expertise in rare disease research, collaborating with patient groups, clinical key opinion leaders, and scientific discovery teams in her role with ACD.
EMILY REINHARDT – PATIENT REGISTRY COORDINATOR
Emily has almost 15 years of research experience, with particular emphasis in pre-clinical and translational neuroscience research. Through her love of science, she has grown passionate about using data to improve the lives of people within her community. Emily is a graduate of Kansas State University, earning both her BS and MS in Psychology with a focus in Behavioral Neuroscience. She currently lives in Vancouver, Washington, with her husband, Andrew.
Katie Pulsipher, PhD – Scientific Advisor
Katie received her PhD in Chemistry from the University of Pennsylvania, where she focused on ferritin protein expression, purification, and analysis. She has over five years of experience working in biopharma and diagnostics, mostly in late-stage development and operations with antibody-based products. Her nephew was diagnosed with GAMT in 2020, and she is excited to use her scientific background to more directly contribute to the CCDS community. Katie lives in Arizona with her husband, two children, and French bulldog.
Colleen Weathers – Programs Coordinator
Colleen Weathers is a student of social sciences and a firm believer that we are all more alike than we are different. She graduated Cal State University Northridge and holds degrees in both Sociology and Theater Arts. A self-proclaimed hobby collector, she has developed interests in fiber arts, piano, hiking, baking, reading, gardening, DIY projects, massage therapy, and whatever else she can get her hands on. Professionally only two things matter to her: being a force for good in the world and doing it alongside an inspired team. The Association for Creatine Deficiencies is a source for both professional and personal fulfillment. She is honored to contribute to ACD’s mission and impact.
Alina Rivera Campo - Social Media Coordinator
Alina Rivera Campo holds a Master’s degree in Digital Marketing from Universidad del Sagrado Corazon and a Bachelor’s degree in Latin American Studies and Mass Communications from the University of Central Florida. She previously worked in local government, where she focused on community outreach and program management to help connect residents with public resources and initiatives. Alina has a passion for storytelling, traveling, and connecting with people from different cultures, and enjoys using communication to build meaningful communities and help share the voices of families within the CCDS community.