Global Family Network

Global Family Network for Cerebral Creatine Deficiencies (CCDS)

Welcome! We are glad you found us and look forward to your family joining our supportive, international network. We are an international organization with Global Ambassadors ready to connect with you to provide localized support and resources.

Join the ACD Family Network

Parent/Guardian Name*
Email Address*
Phone Number

If you provide a phone number, you may receive a text or WhatsApp message up to once per month regarding only the most important messages from ACD. You may opt out at any time.
Primary Language*
CCDS Diagnosis*
- GAMT Deficiency
- AGAT Deficiency
- CTD (also known as SLC6A8 Deficiency, CRTR, and X-linked Creatine Transporter Deficiency)
- Diagnosis Incomplete; in progress
Name and birth year of CCDS patient(s)
Would you like to be connected to another family in your region?*
- Yes
- No
We will share your email address and diagnosis with a supportive family if you choose "yes".
Would you like to receive the ACD quarterly newsletter and important updates?*
- Yes
- No
The ACD shares occasional email announcements and publishes a quarterly newsletter to keep the community updated about the latest news in research, ACD activities and projects, family happenings, and other related information. We never share this list or your personal information.
Address
Any Questions for Us?
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Our Partner Organizations

These organizations are helping increase education, awareness, and support of creatine deficiencies in their local areas. When you join the ACD network, we will offer to connect you with the international ACD support group and the partner organization in your area (if applicable) or individual caregivers that will help you find local support in addition to the larger group!