Family Network

Join the ACD Family Network

A new CCDS diagnosis brings many questions for families, like:

  • What changes can we expect from our child?
  • When should we try to potty-train?
  • How can I handle the emotions and behaviors?
  • How can I encourage my child to take the recommended supplements?
  • Is there a support group I can turn to?

Welcome! We are glad you found us and look forward to your family joining our supportive, international network.

Caregivers and patients with a confirmed CCDS diagnosis can join the ACD Family Network by filling out the form below. We will provide your family with valuable information on CCDS, updates on current research, and help you get connected with other CCDS families that have years of experience and want to support you in this time of adjustment.

By submitting this form, you will be joining the ACD Family Network, and can opt-in to receive a welcome packet and email updates and newsletters. The ACD values your privacy and will not share your information. You may request that your information be removed at any time by emailing the ACD.

*After joining the ACD Family Network, don’t forget to follow us on the social media links below and join the Creatine Deficiency Support Group on Facebook.

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