Join Us for A Rare Affair
You’re invited to attend A Rare Affair – an exclusive event benefiting ACD
Date: Sunday, January 11, 2026
Time: 6:30 PM – 9:00 PM PST
Location: Grand Beacon Hotel Starlight Room, San Francisco
100% of ticket proceeds from this year’s event will directly support ACD’s 2026 Patient + Scientific Symposium, and the families and children who attend
The impact of your generosity is immense…
Every $250 A Rare Affair ticket has the power to send one child with a CCDS to the National Abilities Center day camp for adaptive outdoor fun with trained facilitators while their parents attend and engage in the scientific sessions.
ACD is working to help families around the world affected by Cerebral Creatine Deficiency Syndromes (CCDS), including GAMT, AGAT, and Creatine Transporter Deficiencies. We’re the largest funder of CCDS research and strong advocates for newborn screening, with a vision that every child with a CCDS will one day be diagnosed and treated in the first week of life. The cost of goods sold to deduct from each ticket is $75.00.
This exclusive event has become a cherished tradition, marking the start of the J.P. Morgan Health Conference. Enjoy premier wines and hors d’oeuvres, graciously provided by our event sponsor, Ultragenyx.