Exhibits & Workshops
Latest Past Events
Newborn Screening Bootcamp- EveryLife Foundation
The EveryLife Foundation is dedicated to advancing the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy. In this spirit, EveryLife is hosting a weekly one hour "Newborn Screening Bootcamp" virtual event each Wednesday from September 30 - October 28. This is a great opportunity to learn more about the...
Global Genes Virtual Summit
Global Genes was founded to empower patients, build communities, and drive forward momentum for rare diseases globally. ACD attends this summit every fall and we are excited to invite our families to join in this year on this virtual platform. This event is open to CCDS families interested in learning more about how we can...
CCDS Workshop at SIMD
For more information, and to register for this event, please visit creatineinfo.org/simd.