Upcoming Events

Loading Events

Upcoming Events › Exhibits & Workshops

Events Search and Views Navigation

Event Views Navigation

September 2020

Global Genes Virtual Summit

September 10 - September 25

Global Genes was founded to empower patients, build communities, and drive forward momentum for rare diseases globally. ACD attends this summit every fall and we are excited to invite our families to join in this year on this virtual platform. This event is open to CCDS families interested in learning more about how we can advocate together for our three rare disorders. September 10 is an orientation for those who have not attended before. September 15-20 includes a variety of…

Find out more »

Newborn Screening Bootcamp- EveryLife Foundation

September 30 - October 28

The EveryLife Foundation is dedicated to advancing the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy. In this spirit, EveryLife is hosting a weekly one hour "Newborn Screening Bootcamp" virtual event each Wednesday from September 30 - October 28. This is a great opportunity to learn more about the newborn screening system and how we can work together to get GAMT added to all newborn screening panels universally. Check out the weekly offerings and…

Find out more »
+ Export Events