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February 2018

Rare Disease Day

February 28

Rare Disease Day Wednesday, February 28, 2018 CCDS are considered rare disorders and the ACD is proud to support Rare Disease Day. Help us join with other rare disease groups in spreading Rare Disease and CCDS Awareness on February 28, 2018. Rare Disease Day is a worldwide initiative. For more information on this international event, visit rarediseaseday.org. For more information about Rare Disease Day in the US, click here. Shop and support ACD to get your CCDS Awareness merchandise today!…

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July 2018

Walk For Strength

July 1

Walk For Strength June 2018 The third annual Walk for Strength is coming soon! Look for the date and sign ups to be announced early 2018. This walk is meant to be participated in by all CCDS families in their local communities. Your group may be as small as 1 or as large as you can recruit! Email us for more ideas and flyers to distribute, etc. at info@creatineinfo.org.

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CCDS Scientific and Patient Symposium

CCDS Symposium 2018

July 26 @ 6:30 pm - July 29 @ 12:00 pm
The Westin Austin Downtown, 310 E 5th St
Austin, TX 78701 United States
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October 2018

Children’s Neurology Society Meeting 2017

October 4 - October 6

Children's Neurology Society Meeting 2017 Kansas City, MO October 4-6, 2017 At this meeting, we were able to speak to many children's neurologists about the need for early diagnosis of CCDS. We were also able to answer their questions thanks to information from a survey completed by CCDS families.

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