Upcoming Events

Loading Events

Upcoming Events

Events Search and Views Navigation

Event Views Navigation

February 2021

CCDS Day 2021

February 1

  CCDS Day 2021 is February 1st. How has CCDS changed your story? If you’d like to participate in our #CCDSDay2021 Campaign, send us a picture of your child/family and a quote answering this question. Email [email protected]  Please also sign and complete this release form, giving us permission to share your picture and quote.

Find out more »

Rare Disease Day 2021

February 28 @ 8:00 am - 11:30 pm MST

February 28th is Rare Diseases Day. This year, we will raise awareness AND empower research!  Join the CreatineInfo Registry on February 28th.  Together we will search for answers and help move research forward. To learn more, contact [email protected] or sign up for updates here: https://bit.ly/ACDpatientregistry.

Find out more »

CreatineInfo Registry Launch

February 28 @ 8:00 am - 11:30 pm MST

This Rare Disease Day, your story helps to further research! The ACD, in partnership with NORD, is launching a Natural History Study Patient-reported Registry on February 28th. Join the registry and help us further research for a better quality of life for those impacted by Creatine Deficiencies.

Find out more »

June 2021

CCDS Scientific + Patient Symposium 2021

June 26 @ 8:00 am - June 29 @ 5:00 pm MDT
$15 – $250

2020 Symposium Rescheduled The ACD has been closely monitoring the spread of COVID-19 and working with our scientific medical advisors, in addition to following recommendations from the Centers for Disease Control (CDC) and World Health Organization (WHO), on precautions surrounding travel and large events. After careful consideration and at the advice of our scientific advisors, the ACD has decided in the best interest and health of all parties, to postpone the 2020 Scientific + Patient Symposium. We are saddened to…

Find out more »
+ Export Events