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November 2021

2021 Holiday Heroes

November 1, 2021 - January 1, 2022

More information to come!

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February 2022


February 1, 2022
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Rare Disease Day

February 28, 2022
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June 2022

2022 CCDS Scientific + Patient Symposium

June 25, 2022 - June 28, 2022

This conference is intended for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT, CTD, and AGAT disorders, allowing for a deeper understanding of CCDS in the medical community and helping pave the way for innovation through collaboration. Full schedule & registration information to come! Visit Symposium website

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