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November 2021

2021 Holiday Heroes

November 1, 2021 - January 1, 2022

Learn more about Holiday Heroes 2021 and make a donation today!

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December 2021

Virtual Town Hall: A Discussion with Ultragenyx

December 17 @ 3:00 pm - 4:00 pm MST

Do you have questions about the recent changes announced by Ultragenyx to their CTD clinical development program? ACD is hosting a virtual town hall event on December 17th from 2-3 pm PT with Ultragenyx representatives to answer your questions. We will hear from the following Ultragenyx team members: Marcus Andrews, PhD, Senior Director, Non-Clinical Sciences, Pharmacology/Toxicology Hilary Beggs, PhD, Executive Director, Program Team Leader Melanie Brandabur, MD, Senior Medical Director, Global Clinical Development Register and submit your questions here.

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February 2022


February 1, 2022
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Rare Disease Day

February 28, 2022
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June 2022

2022 CCDS Scientific + Patient Symposium

June 25, 2022 - June 28, 2022

This conference is intended for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT, CTD, and AGAT disorders, allowing for a deeper understanding of CCDS in the medical community and helping pave the way for innovation through collaboration. Full schedule & registration information to come! Visit Symposium website

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