Be a Holiday Hero. Make Wishes Come True.
Did you know that only one in ten clinical trials for rare diseases get to a treatment? Children with Cerebral Creatine Deficiency Syndromes (CCDS) NEED treatments, and we need YOUR help to research multiple paths to get there. The more research channels we invest in, the more likely we are to find treatments! There are several research initiatives currently underway that are showing promising results. With your help we will launch additional initiatives in 2022!
It is only through the generosity of our Holiday Heroes that we are able to keep these projects moving forward!