We Are Ready For a Cure

Kelly was diagnosed with Creatine Transporter Deficiency CTD in December 2025.

He is a joyful little boy who loves big hugs, fire trucks, snuggles, and his favorite stuffed animals, Hippo and Bunny. With endless energy and wild hair, Kelly—affectionately known as “3sey”—lights up every room he enters.

While he struggles with communication, his spirit, love, and determination shine through every day.

We are fighting for 3sey's future. You can help us fight by donating today.

The Association for Creatine Deficiencies (ACD) is a non-profit organization dedicated to finding a cure for CTD. For over a decade, they have worked with top-tier institutions such as UCLA, Stanford, and Boston Children’s with dedicated researchers who are driving progress.

Now, with clinical trials closer than ever, ACD needs one thing to move forward—funding. We have joined their Race for a Cure in an effort to help reach their $8 million fundraising goal.

Join us in the fight to cure creatine deficiencies.

For hundreds of children around the world living with a cerebral creatine deficiency, every day is unpredictable.

These rare genetic disorders disrupt the brain’s ability to process or transport creatine, a vital molecule for energy, especially in the brain and muscles. As a result, children may face developmental delays, speech and motor challenges, seizures, behavioral differences, and frequent medical interventions.

There is hope on the horizon!

In some forms of the condition, early intervention with supplementation has led to dramatically better outcomes. Though CTD remains without a proven cure today, early studies and emerging research are illuminating a path forward. Your support can accelerate that journey.