Race for a Cure:
Treatments By 2028
Children with Creatine Deficiencies Need Your Help.
Race for a Cure, launched in 2025, aims to accelerate progress toward a cure. Help us in our mission to advance therapies and reach clinical trials by 2028 by making a donation.
Your Support Will Help Us Continue The Race
$5.1 million already invested
- Johns Hopkins University – 2-year research investment to accelerate their work to deliver creatine to the brain, including to neurons, using dendrimer nanoparticles, without the need of a creatine transporter, to help patients with CTD.
- UC Berkeley – 1-year research award to accelerate the development of a novel method to deliver a key enzyme directly into cells to enable creatine production in individuals with GAMT deficiency.
- Stanford University – 2-year research award to build upon their work developing new ways to deliver creatine directly into cells without relying on the faulty transporter protein that causes CTD.
- Ultragenyx – investment in the clinical development of an investigational therapy for Creatine Transporter Deficiency (CTD) with a total commitment of $4 million as the program progresses.
Learn more about ACD’s research investments and 2026 Race for a Cure initiatives here.
Ways You Can Make a Difference Today
We’re seeking big-hearted donors, foundations, and sponsors to contribute generously. Set up a meeting with our Executive Director and explore donation options such as stock, DAF, and crypto donations and multi-year pledges.
Set up a recurring monthly donation and help us focus less on continuous fundraising and more on our mission to find a cure! This is also a great way to spread out your giving across time. Join Momentum League, monthly donors with perks!
*Find more ways to give (e.g., stock, DAF, crypto, check, etc.)
Jeffrey Allen Rings Nasdaq Bell
In recognition of his Beast Games win and CTD advocacy, Jeff rang the Nasdaq Closing Bell on July 23, 2025 alongside Beast Industries executives and members of the ACD community, announcing the kick off of the “Race for a Cure”!
Video 0:00 – 8:30: Jeff and ACD kids on the Nasdaq screen in Times Square.
Video 11:54: Jeff’s remarks at the Nasdaq podium.
Video 15:50: Countdown to the closing bell.
