Race for a Cure:
Treatments By 2028
Children with Creatine Deficiencies Need Your Help.
Race for a Cure, launched in 2025, aims to raise $8 million in 2026 to accelerate progress toward a cure. Help us in our mission to advance therapies and reach clinical trials by 2028.
Your Support Today Will:
- Speed Proven Research – Building on over $1.5 million invested in research, we will expand promising research in the areas of gene therapy, drug development, and more.
- Award Research Acceleration Grants – Fast-track promising therapies toward the IND submission phase, driving toward trial-readiness by 2028.
- Expand Newborn Screening – Fund CTD and AGAT newborn screening research and continue GAMT advocacy efforts.
Ways You Can Make a Difference Today
We’re seeking big-hearted donors, foundations, and sponsors to contribute generously. Set up a meeting with our Executive Director and explore donation options such as stock, DAF, and crypto donations and multi-year pledges.
Set up a recurring monthly donation and help us focus less on continuous fundraising and more on our mission to find a cure! This is also a great way to spread out your giving across time. Join Momentum League, monthly donors with perks!
*Find more ways to give (e.g., stock, DAF, crypto, check, etc.)
Jeffrey Allen Rings Nasdaq Bell
In recognition of his Beast Games win and CTD advocacy, Jeff rang the Nasdaq Closing Bell on July 23, 2025 alongside Beast Industries executives and members of the ACD community.
Video 0:00 – 8:30: Jeff and ACD kids on the Nasdaq screen in Times Square.
Video 11:54: Jeff’s remarks at the Nasdaq podium.
Video 15:50: Countdown to the closing bell.
