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Author: acd_master

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Raising Reid” – Whitnie

Byacd_master June 21, 2016October 26, 2022

“Raising Reid” – Whitnie They say it takes a village to raise a child. I believe that to be true….

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“This Too Shall Pass” – Nathan

Byacd_master June 7, 2016October 26, 2022

“This Too Shall Pass” – Nathan Hello again friends, thanks for taking the time to once again visit with our…

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CCDS Family Stories | GAMT Deficiency

“Mother of a Miracle” -Sarah

Byacd_master June 2, 2016October 26, 2022

I’m Sarah and my daughter Ella is now 6 and a half. She was diagnosed with GAMT at just over…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Sweet William” – Jessica

Byacd_master May 24, 2016October 26, 2022

“Sweet William” – Jessica Hi, my name is Jessica and my son William, who just turned 5, has Creatine Transporter…

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CCDS Family Stories | GAMT Deficiency

“Out of the Dark” – Beth

Byacd_master May 17, 2016October 26, 2022

“Out of the Dark” – Beth When it comes to high points in my life, I have many—my wedding day,…

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Association for Creatine Deficiencies

RUSP Presentation – Heidi

Byacd_master May 8, 2016October 26, 2022

RUSP Presentation – Heidi Hi. My name is Heidi Wallis. I am the mother of four children- two with GAMT…

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CCDS Family Stories | GAMT Deficiency

RUSP Presentation – Laura

Byacd_master May 8, 2016October 26, 2022

RUSP Presentation – Laura My name is Laura Martin and I’m here with the Association for Creatine Deficiencies to tell…

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Association for Creatine Deficiencies

RUSP Presentation -Cost Analysis

Byacd_master May 8, 2016October 26, 2022

Early treatment of GAMT Deficiency is effective and affordable [columns] [column layout=”two”] Benny was undiagnosed until 5 years of age….

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Association for Creatine Deficiencies

RUSP Presentation -Kim

Byacd_master May 8, 2016October 26, 2022

RUSP Presentation – Kim Hello, my name is Kim Tuminello and I am a mother of 2 children with GAMT….

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Our Salty & Sweet Life” – Nathan

Byacd_master April 26, 2016October 26, 2022

“Our Salty & Sweet Life” – Nathan Welcome to what I fully expect to be a long list of random…

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