Living and Learning with GAMT
Living and Learning with GAMT After Jade was born in 1987, our family underwent major changes while working with early…
“Does It Get Easier”—Chelsi
“Does It Get Easier” —Chelsi Does living with CTD ever get any easier? When the burst of behaviors starts and…
“Notes from the 2023 Virtual Conference” —Kim
Notes from the 2023 Virtual Conference, General Sessions –Kim In 2022, I visited a full CCDS symposium for the first time….
“How Gio’s Diagnosis Affected Us” -Sylvia
“How Gio’s Diagnosis Affected Us” –Sylvia In 2019 I was planning to have a hysterectomy due to my endometriosis, but…
No Limits
“No Limits” — Lacy One of the hardest things about learning your child has a disability is the limits that…
Creatine Decoded: Prolonged QTc, Long QT Syndrome and CCDS, Q&A with Dr. Mark Levin
Prolonged QTc, Long QT Syndrome and CCDS: Q&A with Dr. Mark Levin Dr. Mark Levin is a board certified pediatric…
“Giant Boxes for Giant Walks” – Faith, ACD Programs Coordinator
“Giant Boxes for Giant Walks” – Faith, ACD Programs Coordinator I wish I had taken a photo of the boxes…
Reflections on the CCDS EL-PFDD
Reflections on the CCDS EL-PFDD By Celeste Graham, ACD Director of Education I had always thought of the Food and…
Embracing the puzzle of rare diseases: reflections on non-profit leadership and service
Embracing the puzzle of rare diseases: reflections on non-profit leadership and service Special Message to CCDS Community from Former ACD…
ACD Fellowship Projects Make Progress in 2022
ACD Fellowship Projects Make Progress in 2022 The Association for Creatine Deficiencies (ACD) is playing an active role in funding…