“Does It Get Easier”—Chelsi
“Does It Get Easier” —Chelsi Does living with CTD ever get any easier? When the burst of behaviors starts and…
“Notes from the 2023 Virtual Conference” —Kim
Notes from the 2023 Virtual Conference, General Sessions –Kim In 2022, I visited a full CCDS symposium for the first time….
“How Gio’s Diagnosis Affected Us” -Sylvia
“How Gio’s Diagnosis Affected Us” –Sylvia In 2019 I was planning to have a hysterectomy due to my endometriosis, but…
No Limits
“No Limits” — Lacy One of the hardest things about learning your child has a disability is the limits that…
“Our Experience of CTD” – Kayla
“Our Experience of CTD” – Kayla We’ve shared that Creatine Transporter Deficiency (CTD) can cause seizures, speech, intellectual, and motor…
“Awareness” – Lacy
“Awareness” – Lacy I find myself thinking a lot about awareness. It has been a buzzword in our lives for…
“Our Life with Epilepsy” – Nathan
“Our Life with Epilepsy” – Nathan Hello again, CCDS family, sorry it has been a while since I have contributed…
“Bye, mom” – Nancy
“Bye, mom” – Nancy “Bye mom!” These were words I had longed to hear for nearly two years. Our youngest…
“Rare Diseases” – Lacy
“Rare Diseases” – Lacy Being a parent of a child with a rare disease has its unique challenges. There are…
“The Carousel” – Nancy
“The Carousel” – Nancy The bell rang, the music started, and we began moving slowly. The expression on his face…