ACD's Scientific Conferences
ACD hosts an annual conference with the goal of uniting the scientific and patient communities and fostering research collaboration.
2026 CCDS Symposium
This important event brings together the CCDS scientific, medical, industry, policymaker, and patient communities. Research and family presenters will share their academic and lived experiences and knowledge of GAMT, CTD, and AGAT, allowing for a deeper understanding of CCDS and a sense of collaboration as we Race to a Cure together!
Past Conference Recordings
2025 ACD Virtual Conference
2024 ACD Symposium - Salt Lake City
2023 ACD Virtual Conference
2022 ACD Symposium - Park City, Utah
2021 ACD Virtual Conference
2020 ACD Virtual Conference
The Association for Creatine Deficiencies hosted the 2020 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference on August 7th and 8th, as well as a keynote talk on August 2nd. The goal of this meeting was to share the latest CCDS research and to broaden our research network. Talks covered a variety of topics such as natural history data, computational analysis of mutations, structural insights, as well as new directions for treatments, including gene therapy.
2019 CCDS Conference - Rotterdam
Cerebral Creatine Deficiency Syndrome (CCDS) Workshop following SSIEM September 6 & 7, 2019 in Rotterdam
Dr Gajja Salomons, Xtraordinaire, and ACD have the pleasure to host the 2019 Symposium on Cerebral Creatine Deficiency Syndromes “CCDS” in Rotterdam on Friday, September 6 and Saturday, September 7.
This symposium offered a unique opportunity for the scientific and medical communities, the experts, and the patients’ families to meet and exchange on CCDS.
With a multidisciplinary approach it gave attendees the opportunity to discuss the recent research data, future developments, and more importantly allow a privileged relationship between patient families, physicians, and scientists.
View the schedule in English here.
2018 ACD Symposium - Austin, Texas
The 2018 symposium was held in Austin, TX for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals learned from families and patients while also presenting their experience and knowledge of GAMT, CTD, and AGAT disorders, allowing for a deeper understanding of CCDS in the medical community and helping pave the way for innovation through collaboration.