Events
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Rockin’ For A Cause
Rockin' For A Cause Dripping Springs, TX Saturday, September 30, 2017 ACD’s first ever benefit concert, "Rockin' for a Cause", was held in Austin, Texas at the Mercer Street Dance Hall. Live music was provided by Worn Out Souls and headliner Micky and the Motorcars. The event brought in over 200 people in support of...
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Walk For Strength
Walk For Strength June 9, 2018 Registration is now open for the third annual Walk for Strength. This walk is meant to be participated in by all CCDS families in their local communities. Your group may be as small as 1 or as large as you can recruit! Email us for more ideas and flyers...
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2018 CCDS Scientific + Patient Symposium
The first-ever in-person CCDS Symposium was held in Austin, Texas with patients, clinicians, and researchers attending July 26 through July 29. Learn more here. Find the recordings of talks here.
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CCDS Workshop at SIMD
For more information, and to register for this event, please visit creatineinfo.org/simd.
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CCDS Workshop -Rotterdam
Dr Gajja Salomons, Xtraordinaire, and ACD have the pleasure to host the 2019 Symposium on Cerebral Creatine Deficiency Syndromes “CCDS” in Rotterdam on Friday, September 6 and Saturday, September 7.
This symposium offers a unique opportunity for...
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Walk for Strength 2020
Sunday, August 2nd, 2020 This year we're walking as one big team! This year, while respecting local health guidance, CCDS families, friends, researchers, and supporters worldwide will be walking in support of those affected by GAMT, AGAT, and CTD. Hold your family's walk when and where it suits you and join us afterward at the Community Social Hour. #socialdistance...
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Virtual Conference 2020
The Association for Creatine Deficiencies hosted the 2020 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference on August 7th and 8th, as well as a keynote talk on August 2nd. The goal of this meeting was to share the latest CCDS research and to broaden our research network. Talks covered a variety of topics such as...
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Walk for Strength 2021
Join us on Saturday, August 21st, 2021 for the ACD's sixth annual Walk for Strength! Click here to register!
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2021 CCDS Virtual Conference
The 2021 CCDS Virtual Conference will be held virtually on September 10th and 11th, 2021. The meeting will cover two days of scientific talks by international researchers and physicians from around the world. The meeting is hosted by the Association for Creatine Deficiencies (ACD). The mission of the ACD is to advocate, educate, and promote...
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FDA Webinar: The Clinical Trials Process
Register today! The FDA is presenting an important webinar to the CCDS community Friday, October 22nd, from 3:00-4:00 EST. Dr. Sheila Farrell, MD, MPH from the FDA’s Center for Drug Evaluation and Research will discuss the clinical trials process. View the recording here.
