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  • 2021 CCDS Virtual Conference

    The 2021 CCDS Virtual Conference will be held virtually on September 10th and 11th, 2021. The meeting will cover two days of scientific talks by international researchers and physicians from around the world. The meeting is hosted by the Association for Creatine Deficiencies (ACD). The mission of the ACD is to advocate, educate, and promote...

  • FDA Webinar: The Clinical Trials Process

    Register today! The FDA is presenting an important webinar to the CCDS community Friday, October 22nd, from 3:00-4:00 EST. Dr. Sheila Farrell, MD, MPH from the FDA’s Center for Drug Evaluation and Research will discuss the clinical trials process. View the recording here.

  • 2021 Holiday Heroes

    Learn more about Holiday Heroes 2021 and make a donation today!

  • 2022 CCDS Scientific + Patient Symposium

    This conference is intended for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT, CTD, and AGAT disorders, allowing for a deeper understanding of CCDS in the medical...

  • Walk for Strength 2022

    Join us on Saturday, August 20th, 2022 for the ACD's 7th annual Walk for Strength! Visit our Walk for Strength 2022 page to learn more, set up your team and register!

  • Holiday Heroes 2022

    Holiday Heroes 2022 is here! Learn more about this year's campaign goals and how you can participate here.

  • 2023 CCDS Virtual Conference – Caregiver Session

    The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling experience, sleep training for CCDS patients, and identifying and managing CCDS behavior challenges. Visit the conference page and register today by clicking here!

  • 2023 CCDS Virtual Conference – Main Sessions

    Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and advancements. Visit the conference page and register today by clicking here!

  • Holiday Heroes 2023

    Holiday Heroes ACD's most important fundraising event of the year! Our goal is to raise $350,000 for our exciting 2024 research initiatives. Be a part of this community effort and help change lives for those living with CTD, AGAT, and GAMT! The Holiday Heroes campaign runs from November 28 to December 31, 2023 Click here...