Fundraiser & Silent Auction Benefitting ACD’s Patient Strong Fund
June 30, 2024 • 6:00 – 10:00 PM
Little America Hotel
500 Main St, Salt Lake City, UT
Join us for dinner & dancing
All attire welcome
Attendees will be from our patient community, CCDS research, clinical care, government policy and the pharmaceutical industry.
Proceeds of the Champions for a Cure Gala will benefit Association for Creatine Deficiencies to support education, newborn screening and diagnostic advocacy, family support and research for Cerebral Creatine Deficiency Syndromes.
Creatine deficiencies account for an estimated 3.5% of all cases of undiagnosed cognitive disability and autism
Every day without adequate creatine is a day lost in the fight against brain damage, muscular loss, developmental delays and seizures
On average, it takes 7 years for families to get a diagnosis
If diagnosed at birth, 2 of the 3 creatine deficiencies can be treated and patients can experience typical growth and development
We need your support to make a difference for CCDS families now!
ACD is a parent-led rare, neurodegenerative disease non-profit on a mission to find a cure for creatine deficiencies (CCDS).
Support for our 2024 Symposium allows us to continue to fund life-changing research and unite our community in advocating and advancing actions that can lead to a cure or treatment.
For all questions related to the gala, auction items or sponsorships, please contact
Gala Director: Kelsie Nolan • kelsie@creatineinfo.org • 973-590-7144
