2026 CCDS Scientific + Patient Symposium
June 25-28, 2026 at Zermatt Utah Resort & Spa -Midway, Utah
This important event brings together the CCDS scientific, medical, industry, policymaker, and patient communities. Research and family presenters will share their academic and lived experiences and knowledge of GAMT, CTD, and AGAT, allowing for a deeper understanding of CCDS and a sense of collaboration as we Race for a Cure together!
Symposium Schedule
- Thursday, June 25: Outcome Measurement Tools Session 2pm-5pm; Open to everyone.
- Friday, June 26: Scientific Talks & Kids Camp 9am-5pm
- Saturday, June 27: Scientific Talks & Kids Camp 9am-5pm, Gala 6:30-9pm
- Sunday, June 28: OPTIONAL Family “Stay & Play” Day
Kids Camp & child care
**Kids Camp is Full. We are not longer able to accept registrations for kids camp.**
- February 28th – last day to register for Kids Camp
- June 25- Onsite care at Zermatt 1PM-4:30PM.
- June 26 & 27- Choose between onsite care and field trips to the National Ability Center 8:30AM-5PM.
Meals
- Dinner June 25 through Breakfast June 28 are provided.
June 28: Family Stay & Play Day (optional)
- Sunday, June 28 is meant to provide the option for families to stay and socialize with other CCDS families after the symposium. ACD will provide details of available adventures and services in the Midway and Park City area. Families will need to provide their own meals and activities.
- Note: This may change, depending on sponsorships received. Expect further details in spring 2026.
Important Dates
- April 30: Abstract deadline
- May 28: Final symposium registration deadline (Kids Camp may not be available after February 28; contact us to confirm)
- May 28: Last day to reserve a room at Zermatt with the ACD Symposium rate; adjoining rooms and suites are limited so don’t delay booking your room!
Attendance Options
- Registration is available only for in-person attendance. The talks will be recorded and posted to ACD’s YouTube Channel.
Travel Information
ACD Hotel Room Block
Reserve your room today at the link below, or by calling the hotel the Front Office Manager Ana directly at +1-435-709-9529. Request the “Association for Creatine Deficiencies” room block.
There are a limited number of rooms. If you are in need of connecting rooms, or special accommodations, please call the hotel to ensure those requests are possible and are noted properly.
Symposium registration does not include a hotel room. Attendees are responsible for arranging their lodging. Please stay at the Zermatt, in our hotel block if possible. We’ve negotiated a low rate and filling our block of rooms allows us to host the symposium at this hotel. We believe you will enjoy this hotel!
Air & Ground Transportation
Transportation between the airport and hotel are to be arranged by the participant. The hotel does not provide a shuttle.
SLC is the nearest airport. We recommend renting a car or using a taxi or rideshare app (appx $80 each way). The hotel is about an hour from the airport.
Champions for a Cure Gala
The 2026 CCDS Scientific + Patient Symposium culminates with a special celebration for our community. Plan to join us for a fun and elegant evening of entertainment, delicious food and drinks, and a special awards ceremony. All dress codes are welcome—from black tie to business casual to kids dressed for comfort.
- Symposium registration includes one gala ticket.
- CCDS family registration includes one gala ticket per person in the household.
- Additional gala tickets may be purchased separately here.
Abstracts are now being accepted for presentations at the 2026 CCDS Symposium.
- Deadline for Submission: The deadline for submission of abstracts is April 30, 2026.
- Registration: There is no fee to submit an abstract. However, all attendees and presenters will be required to register for the conference.