Attendance at the Global Genes Rare Patient Advocacy 2014 Summit

Huntington Beach, California
September 2014

The ACD attended the 2014 Global Genes Allies and Rare Disease Advocacy Summit, in Huntington Beach, California. At this year’s event, the ACD left with helpful information and new contacts. We attended workshops to learn more about Patient Registries, Grant Writing, and Fundraising. This was Global Gene’s 3rd Annual Summit and was host to over 350 attendees and over 1,000 participated via webcam. To see more, go to www.globalgenes.org.