Walk for Strength 2022
2022 Walk for Strength Guidance from a successful team captain- how to set up a team and recruit participants.
2022 Walk for Strength Guidance from a successful team captain- how to set up a team and recruit participants.
“Share Your Rare” – Regina I had the recent pleasure of attending an event hosted by the Oklahoma Rare Action…
Creatine Deficiency Educational Video When it was decided to do the first ACD Scientific Symposium and Family Conference in Austin,…
“Gene Sequencing and Gene Therapy” – Matthew Skelton, PhD Watching the videos that are posted from the conference brings back…
“CTD Workshop Recap” – Whitnie When they say Paris is magical, itβs true. The ACD was honored to attend the…
“2020 Global Genes LIVE” – Faith I recently joined the ACD as the new Programs Coordinator, and as part of…
“A Diagnosis is a Chance at Hope” – Carlie By way of background, I am new to the CCDS community….