Past Events from December 10, 2023 – December 10, 2023 – Association for Creatine Deficiencies

Walk For Strength 2024

Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of a community that is committed to building strength and changing lives! Registration will be available in early 2024. Subscribe to receive updates about upcoming ACD events. 

Sibshops 10/7

Learn more and register here.

Sibshops 7/8

Learn more and register here.

GAMT Webinar

2023 CCDS Virtual Conference – Caregiver Session

The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling experience, sleep training for CCDS patients, and identifying and managing CCDS behavior challenges. Visit the conference page and register today by clicking here!

2023 CCDS Virtual Conference – Main Sessions

Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and advancements. Visit the conference page and register today by clicking here!

Community Chat Series: Dr. Steve Baker

Zoom Webinar

ACD is launching a “Community Chat” series of meetings in which we will discuss a topic with the community, have ‘Ask Me Anything’ meetings with researchers, and more! Our first meeting will be with Dr. Steven Baker to learn about the progress his team has made in year 1 of the Creatine Deficiency Research Center […]

ACD Fellowship Applications Due

ACD is pleased to announce a call for applications for research fellowships towards advancing knowledge of Cerebral Creatine Deficiency Syndromes. All topics will be considered but preference will be given to proposals that facilitate progress to the clinic, e.g. method/assay development for biomarkers, model/reagent development, drug screening, etc. The deadline to apply is November 30, 2023. Fellowship awards carry a letter of […]