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  • 2021 Holiday Heroes

    Learn more about Holiday Heroes 2021 and make a donation today!

  • 2022 CCDS Scientific + Patient Symposium

    This conference is intended for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families and patients while also presenting their experience and knowledge of GAMT, CTD, and AGAT disorders, allowing for a deeper understanding of CCDS in the medical...

  • Walk for Strength 2022

    Join us on Saturday, August 20th, 2022 for the ACD's 7th annual Walk for Strength! Visit our Walk for Strength 2022 page to learn more, set up your team and register!

  • Holiday Heroes 2022

    Holiday Heroes 2022 is here! Learn more about this year's campaign goals and how you can participate here.

  • 2023 CCDS Virtual Conference – Caregiver Session

    The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling experience, sleep training for CCDS patients, and identifying and managing CCDS behavior challenges. Visit the conference page and register today by clicking here!

  • 2023 CCDS Virtual Conference – Main Sessions

    Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and advancements. Visit the conference page and register today by clicking here!

  • Holiday Heroes 2023

    Holiday Heroes ACD's most important fundraising event of the year! Our goal is to raise $350,000 for our exciting 2024 research initiatives. Be a part of this community effort and help change lives for those living with CTD, AGAT, and GAMT! The Holiday Heroes campaign runs from November 28 to December 31, 2023 Click here...

  • Walk For Strength 2024

    Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of a community that is committed to building strength and changing lives! Click here to learn more about the Walk For Strength. Subscribe to receive updates...

  • 2024 CCDS Scientific + Patient Symposium in Salt Lake City, UT

    The 2024 CCDS Scientific + Patient Symposium will be held at the Little America Hotel in Salt Lake City, Utah. Talks will be presented all day June 29 & 30. We recommend arriving June 28 or earlier and departing July 1 or later. We strongly suggest that you reserve your hotel room(s) as soon as possible. All rooms,...