• Walk For Strength

    Walk For Strength June 9, 2018 Registration is now open for the third annual Walk for Strength. This walk is meant to be participated in by all CCDS families in...

  • 2018 CCDS Scientific + Patient Symposium

    The first-ever in-person CCDS Symposium was held in Austin, Texas with patients, clinicians, and researchers attending July 26 through July 29. Learn more here. Find the recordings of talks here.

  • CCDS Workshop at SIMD

    For more information, and to register for this event, please visit creatineinfo.org/simd.

  • CCDS Workshop -Rotterdam

    Dr Gajja Salomons, Xtraordinaire, and ACD have the pleasure to host the 2019 Symposium on Cerebral Creatine Deficiency Syndromes “CCDS” in Rotterdam on Friday, September 6 and Saturday, September 7.

    This symposium offers a unique opportunity for...

  • Walk for Strength 2020

    Sunday, August 2nd, 2020 This year we're walking as one big team! This year, while respecting local health guidance, CCDS families, friends, researchers, and supporters worldwide will be walking in support of those...

    $15 – $500
  • Virtual Conference 2020

    The Association for Creatine Deficiencies hosted the 2020 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference on August 7th and 8th, as well as a keynote talk on August 2nd. The...

    Free
  • Walk for Strength 2021

    Join us on Saturday, August 21st, 2021 for the ACD's sixth annual Walk for Strength! Click here to register!

  • 2021 CCDS Virtual Conference

    The 2021 CCDS Virtual Conference will be held virtually on September 10th and 11th, 2021. The meeting will cover two days of scientific talks by international researchers and physicians from...

  • FDA Webinar: The Clinical Trials Process

    Register today! The FDA is presenting an important webinar to the CCDS community Friday, October 22nd, from 3:00-4:00 EST. Dr. Sheila Farrell, MD, MPH from the FDA’s Center for Drug...

  • 2021 Holiday Heroes

    Learn more about Holiday Heroes 2021 and make a donation today!