Tag Archives: CCDS

“Spiro and I” – Janet My Creatine Transporter Deficiency journey began September 5th, 2009 with the birth of my son Spiro. Although I didn’t know it at the time, our […]

“Run” – Nathan Greetings again friends! While I had a post all written about expectations for this week, I just felt like this topic weighed heavier on my heart, so […]

“The Seizure Battle” – Heidi When Samantha was five, she began having absence seizures. The quick, least scary type of seizures (still scary) where she would seem to look up […]