Walk for Strength 2022
2022 Walk for Strength Guidance from a successful team captain- how to set up a team and recruit participants.
2022 Walk for Strength Guidance from a successful team captain- how to set up a team and recruit participants.
“Discussions from the Society for Inherited Metabolic Disorders (SIMD) Meeting” – Tony The Society for Inherited Metabolic Disorders (SIMD) holds…
“Three Lessons from the First ACD Patient and Family Symposium” – Laura On a balmy night in late July we…
The Power of Science and Connections – Thoughts on the 2022 Symposium When I volunteered for the PaReNts project back…
“A Look into My Experiences at Rare New England” – Celeste If you’ve ever wondered how to get involved with…
“Cerebral Creatine Deficiency Syndromes: The Road from Diagnosis to Therapies” – Erin I think most parents of children with Creatine…
Creatine Deficiency Educational Video When it was decided to do the first ACD Scientific Symposium and Family Conference in Austin,…