2022 Walk for Strength Guidance from a successful team captain- how to set up a team and recruit participants.
“2020 Global Genes LIVE” – Faith I recently joined the ACD as the new Programs Coordinator, and as part of…
“Cerebral Creatine Deficiency Syndromes: The Road from Diagnosis to Therapies” – Erin I think most parents of children with Creatine…
“Special Education” – Celeste Wow! I’m still processing all of the things I learned from the 2018 conference in Austin….
Notes from the 2023 Virtual Conference, General Sessions –Kim In 2022, I visited a full CCDS symposium for the first time….
“Share Your Rare” – Regina I had the recent pleasure of attending an event hosted by the Oklahoma Rare Action…
“Gene Sequencing and Gene Therapy” – Matthew Skelton, PhD Watching the videos that are posted from the conference brings back…