Skip to content
Association for Creatine Deficiencies
  • Families
  • Clinicians
  • Research
  • About ACD
  • Shop
Support ACD
Association for Creatine Deficiencies
Home / CCDS Family Stories - Page 14

CCDS Family Stories

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“This Too Shall Pass” – Nathan

Byacd_master June 7, 2016October 26, 2022

“This Too Shall Pass” – Nathan Hello again friends, thanks for taking the time to once again visit with our…

Read More “This Too Shall Pass” – NathanContinue

CCDS Family Stories | GAMT Deficiency

“Mother of a Miracle” -Sarah

Byacd_master June 2, 2016October 26, 2022

I’m Sarah and my daughter Ella is now 6 and a half. She was diagnosed with GAMT at just over…

Read More “Mother of a Miracle” -SarahContinue

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Sweet William” – Jessica

Byacd_master May 24, 2016October 26, 2022

“Sweet William” – Jessica Hi, my name is Jessica and my son William, who just turned 5, has Creatine Transporter…

Read More “Sweet William” – JessicaContinue

CCDS Family Stories | GAMT Deficiency

“Out of the Dark” – Beth

Byacd_master May 17, 2016October 26, 2022

“Out of the Dark” – Beth When it comes to high points in my life, I have many—my wedding day,…

Read More “Out of the Dark” – BethContinue

CCDS Family Stories | GAMT Deficiency

RUSP Presentation – Laura

Byacd_master May 8, 2016October 26, 2022

RUSP Presentation – Laura My name is Laura Martin and I’m here with the Association for Creatine Deficiencies to tell…

Read More RUSP Presentation – LauraContinue

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Our Salty & Sweet Life” – Nathan

Byacd_master April 26, 2016October 26, 2022

“Our Salty & Sweet Life” – Nathan Welcome to what I fully expect to be a long list of random…

Read More “Our Salty & Sweet Life” – NathanContinue

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“A Mother’s Intuition” -Whitnie

Byacd_master April 4, 2016October 26, 2022

“A Mother’s Intuition and How One Family Never Gave Up” – Whitnie Parents have a sixth sense about their children….

Read More “A Mother’s Intuition” -WhitnieContinue

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“The Parker Family” – Melissa

Byacd_master April 1, 2016October 26, 2022

“The Parker Family” – Melissa “There have been angels in my life….” This was written to me on a thank…

Read More “The Parker Family” – MelissaContinue

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Our Journey” -Kelly

Byacd_master April 1, 2016October 26, 2022

“Our Journey” – Kelly When Trenton was born in New York, he weighed 7 lbs 2 ounces. Before we left…

Read More “Our Journey” -KellyContinue

Page navigation

Previous PagePrevious 1 … 12 13 14

ACD logo

© 2026 Association for Creatine Deficiencies. All rights reserved.

ACD Links

  • Family Resources
  • CCDS Research
  • Information for Clinicians
  • Newborn Screening
  • AGAT
  • CTD
  • GAMT

Sitemap

  • Home
  • About  
  • News
  • Donate
  • Blog
  • Contact  
  • Disclaimer  
  • Privacy Policy 
  • Gift Acceptance Policy

The Association for Creatine Deficiencies is a charitable 501c3 organization and contributions may be tax-deductible for U.S. donors.
Our tax EIN# is: 46-2133007

Subscribe for ACD News
Facebook X Instagram YouTube Linkedin 🛒

[google-translator]

Links are provided for informational purposes only; they do not constitute an endorsement or an approval by the Association for Creatine Deficiencies, its Board Members or Scientific Medical Advisory Board. The Association bears no responsibility for the accuracy, legality or content of any products, services or opinions found on this site or the links provided to external sites. Never rely on information on this website in place of seeking professional medical advice. If you are having a medical emergency, call 911.

  • Families
  • Clinicians
  • Research
  • About ACD
  • Shop
Search