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  • 2022 CCDS Scientific + Patient Symposium

    This conference is intended for members of the scientific and medical community, as well as the Cerebral Creatine Deficiency Syndromes (CCDS) patient and family community. Professionals will learn from families...

  • Walk for Strength 2022

    Join us on Saturday, August 20th, 2022 for the ACD's 7th annual Walk for Strength! Visit our Walk for Strength 2022 page to learn more, set up your team and...

  • Holiday Heroes 2022

    Holiday Heroes 2022 is here! Learn more about this year's campaign goals and how you can participate here.

  • 2023 CCDS Virtual Conference – Caregiver Session

    The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling...

  • 2023 CCDS Virtual Conference – Main Sessions

    Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and...

  • Holiday Heroes 2023

    Holiday Heroes ACD's most important fundraising event of the year! Our goal is to raise $350,000 for our exciting 2024 research initiatives. Be a part of this community effort and...

  • Walk For Strength 2024

    Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of...

  • PAReNts 2.0 Webinar

    Zoom Webinar

    Are you interested in participating in PAReNts 2.0 or learning more about the exciting plans for this project? We are hosting a Zoom Webinar on September 6, 2024 at 3...