Tag Archives: Cerebral Creatine Deficiency Syndrome

“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong is like driving your car somewhere you’ve never been before […]

“Saying ‘I Love You’” – Beth It wasn’t until this school year, Benny’s 7th grade year, that we realized he didn’t have the phrase “I love you” on his communication […]

“Franco’s Journey” – Lisa This is our story and our journey that led to our son’s diagnosis of CTD. It has been a long journey to say the least and […]

“The Parker Family” – Melissa “There have been angels in my life….” This was written to me on a thank you note by the wife of a friend who passed […]